What follows is part of a presentation my daughter and I made to an FASD Caregiver Group; she spoke about Life with FASD and below is my presentation on being an advocate. When I started this journey of being a mom to a child with FASD all I knew was what caused it. I knew … Continue reading FASD: What I’ve learned so far.
Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.
Making Political Leaders Aware A few weeks ago my daughter and I participated in a local All Candidates Meeting for the upcoming Provincial Election in Ontario. We were joined by some new friends we have discovered through social media and our advocacy work on behalf of Fetal Alcohol Spectrum Disorder (FASD). Voters were provided with … Continue reading Dear Politicians: Adults In Crisis Waiting for Developmental Services
That is the dilemma in my head lately after reading a post from someone about why we should not share our children’s struggles in this age of social media without their permission. I understand the premise, however can a young child, especially one with a developmental disability, offer consent? Another post I read awhile back … Continue reading FASD Life: To Share or Not to Share
Although since my last personal post, One is a lonely number, things are still in a state of uncertainty in my life, (no luck yet on the job front, my last paycheque was not entered into the system, still waiting for Record of Employment so I can collect Employment Insurance until I find a job, and … Continue reading Finding Calm in the Chaos of Life
On December 14, 2017, Ontario Member of Provincial Parliament Sophie Kiwala presented two important private member's motions for Fetal Alcohol Spectrum Disorder in Ontario. The first one, to recognize September 9th of each year as Fetal Alcohol Spectrum Disorder Awareness Day (FASDay) in Ontario, received unanimous consent from all parties. The gravity of the motion … Continue reading Ontario FASD Community: We Need You!
I'm feeling very down and defeated and alone lately. I've shared a lot about the maiden (and myself in the process) but to be fair maybe I should dig a little deeper and share more of myself. This isn't a self-pity post - at least that isn't the intent. But I haven't been too active … Continue reading One is a lonely number