For anyone that had a great day today, I’m happy for you. For anyone that does not recognize the day, I honour that. For those that had a tough day, I send you much love. I had a tough day. A disappointing day that turned out differently than the plan. My daughter was going to … Continue reading Mowing Mother’s Day
Why not try leaning instead? How are you doing? We’ve passed the one year mark for living in a global pandemic and I don’t know about you, but I have been feeling very alone and struggling to keep my anxiety down and my motivation up. I haven’t written much here about life in the pandemic. … Continue reading Are you hitting the wall during COVID-19?
Have you heard the saying that kids with FASD are 10 second kids living in a 1 second world? It is a great way to illustrate the difference in response between our kids and others without a developmental disability. It is difficult for so many to understand as many of our children look “typical” so … Continue reading 10 Second Kids in a 1 Second World
An interesting discussion on looking for the small positives, turned into a connection with my daughter and discovery that today is National Bubble Wrap Day.
Some of the groups I'm in have posed questions about when is it too old to believe in Santa. While the maiden has on and off mentioned she still believes over the years since she has gotten older, this year she never mentioned anything until Christmas Eve. She wrote a note, poured a glass of … Continue reading A Day Late … but Santa Arrived
At first I wasn't sure how I was going to end this series. When I wrote the original post in 2016 all the wishes were together, and this one flowed with the rest. As a stand alone it wasn't going to have much to it. In the original post I wrote that she didn't ask … Continue reading 12 Wishes for My Daughter and FASD: 2020 Edition
This is the only wish for my daughter and FASD I stated in 2016 that I'm no longer certain of, because of what I have learned and how I have grown. Is it realistic (no) or even appropriate (not sure). Why? Because is it dismissive of people with FASD? Certainly that wasn’t my intent. We are all unique and contribute. My intent was the struggles disappear. Not the people.
There are many reasons why a woman may consume alcohol while pregnant. But FASD is not just a woman or alcohol issue. It is a complex societal issue with many layers. Negative attitudes and perceptions impact women, individuals with FASD and their families. My Wish #8 for FASD is to stamp out stigma, shame and blame.
Throughout the last fourteen years we have accessed a variety of professionals to address various issues. We were lucky as many had some understanding of FASD – but there were others who attempted to help my daughter or provide advice or suggestions, based on what works with neuro-typical children, with disastrous results. A study revealed … Continue reading Wish #7: Professionals Skilled in FASD Diagnosis and Interventions
In Ontario (Canada) a 2016 report Nowhere to Turn for Adults with Developmental Disabilities discovered over 14,000 adults with a development disability were on wait lists for services such as: respite, housing, job support or day programs. The wait for services, depending on the type and area is three years - 20 years! My wish is all adults with a developmental disability, including those with FASD, that require support receive the services they need when they turn 18, without delay.
