I recently finished participation in a six-month support and education group for "older" parents and caregivers of adults with FASD called the Ontario Senior Caregiver Action Network for FASD (OSCAN). They recently released a Resource Guide and announced a new Group.
Have you heard the phrase: expectations are just premeditated resentments? This can happen when we place expectations on our kids with FASD - but it can also happen to ourselves. I was reminded of this lately.
Sometimes as caregivers we forget to get curious or are tired or busy until things begin to escalate. Or we get complacent (or hopeful) that when things are going well we can step back a bit. I was reminded of this recently when the maiden came to me complaining about nightmares and not sleeping well.
Today, February 23, 2022 is Pink Shirt Day - a day set aside every February to raise awareness about bullying and promote kindness and inclusion by working together to treat others with dignity and respect.
Have you read A Handbook for Beautiful People by Jennifer Spruit? It has a main character with FASD. Here is my review.
Trigger Warning: There are details in this post some may find disturbing and distressing. On Saturday, January 15, 2022, Saturday Night Live aired a skit called Winter Formal. The characters spend 4 minutes and 19 seconds promoting their winter formal shop and making derogatory comments about the son. Close to the end, the mother says … Continue reading SNL skit Winter Formal: Humour or ableist?
The maiden wanted pancakes for breakfast on Christmas Day. Something we don't have very often. She even offered to make them. I said I'd help. We bought the mix. A boxed mix was going to prove challenging enough; we are not ready for made from scratch. Syrup and pre-cooked bacon were also purchased. If the … Continue reading The Price of Pancakes. And FASD
Friendships and social relationships can be difficult to navigate for anyone, but for many individuals with FASD there are layers of complexity added to it. That doesn't mean they won't have friends. Sometimes we have to change our expectations of friendships and look for creative ways we can support our child, teen or adult. I … Continue reading Friendships and FASD
It's been almost two months since I wrote: When Your Child Says I Don't Feel Good. We were doing okay for about six weeks. But the complaints have started again. So I booked a follow up in person visit with our health care provider.
Caregivers of individuals with FASD have multiple areas of need and concern, and experience high levels of stress. This is particularly true as children age, and the transition to adulthood may be a time requiring higher supports. What if supports aren’t available? What then?