An interesting discussion on looking for the small positives, turned into a connection with my daughter and discovery that today is National Bubble Wrap Day.
Some of the groups I'm in have posed questions about when is it too old to believe in Santa. While the maiden has on and off mentioned she still believes over the years since she has gotten older, this year she never mentioned anything until Christmas Eve. She wrote a note, poured a glass of … Continue reading A Day Late … but Santa Arrived
At first I wasn't sure how I was going to end this series. When I wrote the original post in 2016 all the wishes were together, and this one flowed with the rest. As a stand alone it wasn't going to have much to it. In the original post I wrote that she didn't ask … Continue reading 12 Wishes for My Daughter and FASD: 2020 Edition
This is the only wish for my daughter and FASD I stated in 2016 that I'm no longer certain of, because of what I have learned and how I have grown. Is it realistic (no) or even appropriate (not sure). Why? Because is it dismissive of people with FASD? Certainly that wasn’t my intent. We are all unique and contribute. My intent was the struggles disappear. Not the people.
Throughout the last fourteen years we have accessed a variety of professionals to address various issues. We were lucky as many had some understanding of FASD – but there were others who attempted to help my daughter or provide advice or suggestions, based on what works with neuro-typical children, with disastrous results. A study revealed … Continue reading Wish #7: Professionals Skilled in FASD Diagnosis and Interventions
In Ontario (Canada) a 2016 report Nowhere to Turn for Adults with Developmental Disabilities discovered over 14,000 adults with a development disability were on wait lists for services such as: respite, housing, job support or day programs. The wait for services, depending on the type and area is three years - 20 years! My wish is all adults with a developmental disability, including those with FASD, that require support receive the services they need when they turn 18, without delay.
My daughter said she wants to live with me forever. When she was young, I told her she could live with me for as long as she needed to. She tells me she is terrified of living without me – that she does not know how she will manage. While she was not ready to … Continue reading An FASD Wish: Confidence in her Future
School is geared for the masses. If we want an inclusive society and promote education as a right, then students should be taught in a way that supports and accommodates their development. FASD is not recognized in our school system as a condition that qualifies for support, be that an Educational Assistant (EA) or Child … Continue reading 2020 Wishes for My Daughter and FASD: #4 Recognition in the School System
One of the keys to helping someone with FASD is to meet them “where they are” not where society thinks they should be. I’ve had discussions with countless people who offer well-meaning but ill-informed advice, such as, “When I was 18, I was in college, had a job, was living on my own, or in … Continue reading FASD Acceptance and Understanding (Wish 3/12)