What follows is part of a presentation my daughter and I made to an FASD Caregiver Group; she spoke about Life with FASD and below is my presentation on being an advocate. When I started this journey of being a mom to a child with FASD all I knew was what caused it. I knew … Continue reading FASD: What I’ve learned so far.
What does success for our children with Fetal Alcohol Spectrum Disorder look like? Most often it looks like nothing to those who do not know the struggles and challenges we face and that sometimes what seems like no big deal to others, is a huge deal in our world. The maiden turns 20 tomorrow. We’ve … Continue reading What is FASD Success?
The maiden went to visit her birth mother for a week. This was the longest visit. Up until now most visits have been a weekend, but she said she wanted to go for a week, so that is what she did. I didn’t realize I would still feel so emotional about it. The night before … Continue reading A Tale of Two Moms
That is the dilemma in my head lately after reading a post from someone about why we should not share our children’s struggles in this age of social media without their permission. I understand the premise, however can a young child, especially one with a developmental disability, offer consent? Another post I read awhile back … Continue reading FASD Life: To Share or Not to Share
Although since my last personal post, One is a lonely number, things are still in a state of uncertainty in my life, (no luck yet on the job front, my last paycheque was not entered into the system, still waiting for Record of Employment so I can collect Employment Insurance until I find a job, and … Continue reading Finding Calm in the Chaos of Life
As I was scrolling through the Our Sacred Breath Facebook feed, I came across an organization that reposted an article The Mighty published - which was based on a post from last year: 12 Wishes for My Daughter and FASD. In the four years I've been writing this blog, this has so far been the most … Continue reading 12 Wishes for FASD: A Year Later
2018 Update: Last year, each of these components were described for days 89-98. However we decided to combine them this year into one day and provide different information for the next 9 days. Stay tuned! The information for Day 89 is used with the permission of CanFASD - I encourage you to visit their webpage … Continue reading Day 89 of 99 Days to FASDay: 10 Fundamental Components of FASD Prevention