Why not try leaning instead? How are you doing? We’ve passed the one year mark for living in a global pandemic and I don’t know about you, but I have been feeling very alone and struggling to keep my anxiety down and my motivation up. I haven’t written much here about life in the pandemic. … Continue reading Are you hitting the wall during COVID-19?
Have you heard the saying that kids with FASD are 10 second kids living in a 1 second world? It is a great way to illustrate the difference in response between our kids and others without a developmental disability. It is difficult for so many to understand as many of our children look “typical” so … Continue reading 10 Second Kids in a 1 Second World
Sharing (with permission) a wonderful piece about parenting a neurodivergent child and Groundhog Day by Lisa MacColl (Motherwell Magazine). While there is no mention of FASD, these are definitely similar experiences to supporting an individual with Fetal Alcohol Spectrum Disorder which is why I asked to share. Groundhog Day, February 2nd, conjures any number of … Continue reading Parenting, Groundhog Day and FASD
An interesting discussion on looking for the small positives, turned into a connection with my daughter and discovery that today is National Bubble Wrap Day.
Some of the groups I'm in have posed questions about when is it too old to believe in Santa. While the maiden has on and off mentioned she still believes over the years since she has gotten older, this year she never mentioned anything until Christmas Eve. She wrote a note, poured a glass of … Continue reading A Day Late … but Santa Arrived
At first I wasn't sure how I was going to end this series. When I wrote the original post in 2016 all the wishes were together, and this one flowed with the rest. As a stand alone it wasn't going to have much to it. In the original post I wrote that she didn't ask … Continue reading 12 Wishes for My Daughter and FASD: 2020 Edition
If my daughter had a time machine, she may choose to go back in time and be born without FASD. But if she chose that I would never have become her mum. My wish is that she could go back in time, receive a diagnosis earlier and therefore receive supports and interventions to lessen the struggles we … Continue reading Wish #11 for My Daughter and FASD: A Time Machine
During the adoption process, no one provided me with any education or training on FASD. No plan was established should I require access to services. We have been though some really trying times. Many people used to ask me, given what we have been through, would I still adopt my daughter if I could do … Continue reading FASD Wish 10/12: Know she is loved
In Ontario (Canada) a 2016 report Nowhere to Turn for Adults with Developmental Disabilities discovered over 14,000 adults with a development disability were on wait lists for services such as: respite, housing, job support or day programs. The wait for services, depending on the type and area is three years - 20 years! My wish is all adults with a developmental disability, including those with FASD, that require support receive the services they need when they turn 18, without delay.
My daughter said she wants to live with me forever. When she was young, I told her she could live with me for as long as she needed to. She tells me she is terrified of living without me – that she does not know how she will manage. While she was not ready to … Continue reading An FASD Wish: Confidence in her Future