fasd on the web

Fetal Alcohol Spectrum Disorder on the web:

Our Sacred Breath on tumblr

The OSB tumblr blog is a more visual FASD blog.

Public Health Agency of Canada

This website provides information on FASD and its effects, current funded projects and funding opportunities, resources, and links to other FASD websites.

Canada FASD Research Network

CanFASD’s mission is to produce and maintain national, collaborative research designed for sharing with all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder.

Better Endings New Beginnings

From Jodee Kulp (USA) We provide hope for children, teens, and adults living, laughing, learning and loving through the challenges before birth — including alcohol exposure (fetal alcohol spectrum disorder – FASD) and other toxins. We believe there are many opportunities to improve level of functioning, health and well-being even in adults. We understand these are whole-body conditions and can include other genetic vulnerabilities or environmental triggers.

FASworld

Provide support and information to parents, caregivers, and professionals dealing with Fetal Alcohol Spectrum Disorder (FASD), as well as individuals living with FASD.

FAS Link

FASlink serves more than 400,000 people annually through this website and the Discussion Forum. The FASlink Archives provide access to more than 130,000 documents on FASD related issues.

Kids Brain Health Network

Kids Brain Health Network involves individuals and organizations passionate about helping children with neurodevelopmental disorders: parents, community groups, researchers, health care professionals, businesses, and governments.

Minnesota Organization on Fetal Alcohol Syndrome (MOFAS)

Like other groups specific to a geographical area, MOFAS shares a lot of resources and information anyone can access.

NOFAS (USA)

NOFAS – UK

NOFAS-UK  (The National Organisation for Foetal Alcohol Syndrome-UK) is dedicated to supporting people affected by Foetal Alcohol Spectrum Disorder (FASD), their families and communities. It promotes education for professionals and public awareness about the risks of alcohol consumption during pregnancy.  NOFAS-UK is a source for information on FASD to the general public, press and to medical professionals.

NOFASD Australia

As a direct result of support from the Australian Government, Department of Health, NOFASD undertakes a range of activities including:

  • Ensuring the voice and concerns of the parents and carers of children and adults living with FASD is represented and included where it needs to be.
  • A helpline, advisory and referral service for those who have FASD or are supporting someone who has FASD;
  • A regular newsletter providing the latest information on all aspects of FASD for all relevant stakeholders;
  • Community and digital education and training services;
  • An up-to-date comprehensive website of curated resources and links to assist in all aspects of FASD;
  • Service provider training to increase sector knowledge and further FASD awareness;
  • Participation and support across all relevant national and international forums and initiatives which promote pregnancy health, prevention, diagnosis, intervention and management of FASD;

FASD evaluations, methods, tools

This website compiles evaluation frameworks, methods, tools, and indicators of success to support the work of community-based FASD prevention programs for pregnant women and new mothers, and supportive intervention programs for adults and older youth with FASD.

The FASD Learning Series

The FASD Learning Series (government of Alberta, Canada) helps individuals with FASD and their caregivers to learn more about FASD and how to support a person with FASD. The webcast and videoconference educational sessions cover a broad range of topics that target both urban and rural audiences.

In 2014/15, the FASD Learning Series presented nine educational sessions, with an overall attendance of almost 1,500 participants. There was overwhelmingly positive feedback about the value of this learning experience – more than 90 per cent of survey respondents indicated that learning goals were met, the content was relevant, and they could apply what they learned to their work.

Provincial Outreach Program for Fetal Alcohol Spectrum Disorder (POPFASD)

Series of E-learning videos

Caregiver Curriculum on FASD

An updated Caregiver Curriculum on FASD (hosted by The FASD and Child Welfare Community of Practice) was launched in June 2016. Now available are new, interactive modules which you can view right from your browser.

The purpose of this curriculum is to provide a venue for caregivers including foster parents, families, kinship care, youth and child care workers, child welfare services, and others trying to understand and cope with many of the life challenges faced by children with FASD.

This curriculum was developed through a research grant from the Public Health Agency of Canada. As an online resource the curriculum has been made accessible and available to users as Power point files and in pdf format and is intended to be shared and used as widely as possible. If this resource is being shared or used as training tool and distributed to others please note that you are required to use the citation provided as this material has an ISBN number and a copyright.

 

NHS Education for Scotland Fetal Alcohol Harm

The e-learning resource has been developed to support a range of activity led by the Scottish Government to substantially reduce the harm caused by alcohol consumption in pregnancy across Scotland.

The course content was developed by ‘Children in Scotland’ with input from the child and maternal health team at NES and the Scottish Government Fetal Alcohol harm national working group. The content was transformed into an interactive e-learning resource and the draft resource was tested and piloted by the maternal and child health team at NES and a group of clinical midwives and lecturers.

FASD and Justice

This Canadian site is designed for justice system professionals and others who want to understand more about FASD. It provides information and resources about Fetal Alcohol Spectrum Disorder (FASD), including background information, case law, legal resources and strategies for effective intervention.

International FASD Awareness Day

There are several ways to find out about Int’l FASDay …. you can do a google or web search and investigate various sources, check out FASDay which has some great information and is a site sponsored by one of the founders of FASDay or check out OSB blog post Day 50 of 99 Days to FASDay which provides links to various organizations around the world with ideas and resources.

Red Shoes Rock is the official website for the annual Red Shoes Rock awareness campaign.

Looking for an on-line support group?

If you are a person with Fetal Alcohol Spectrum Disorder, Check out: FASD: Flying With Broken Wings

If you are a caregiver or front-line worker for a person with FASD, check out: FASD Forever

 

Please note:

I receive no money or endorsements for the above links. They are simply ones I’ve found helpful and are suggestions only. Always conduct your own research and seek out professional advice if needed. If you find a broken link or have a suggestion for an addition, please leave a comment or contact fasd@oursacredbreath.com.

 

 

 

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