Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.
Making Political Leaders Aware A few weeks ago my daughter and I participated in a local All Candidates Meeting for the upcoming Provincial Election in Ontario. We were joined by some new friends we have discovered through social media and our advocacy work on behalf of Fetal Alcohol Spectrum Disorder (FASD). Voters were provided with … Continue reading Dear Politicians: Adults In Crisis Waiting for Developmental Services
That is the dilemma in my head lately after reading a post from someone about why we should not share our children’s struggles in this age of social media without their permission. I understand the premise, however can a young child, especially one with a developmental disability, offer consent? Another post I read awhile back … Continue reading FASD Life: To Share or Not to Share
Although since my last personal post, One is a lonely number, things are still in a state of uncertainty in my life, (no luck yet on the job front, my last paycheque was not entered into the system, still waiting for Record of Employment so I can collect Employment Insurance until I find a job, and … Continue reading Finding Calm in the Chaos of Life
On December 14, 2017, Ontario Member of Provincial Parliament Sophie Kiwala presented two important private member's motions for Fetal Alcohol Spectrum Disorder in Ontario. The first one, to recognize September 9th of each year as Fetal Alcohol Spectrum Disorder Awareness Day (FASDay) in Ontario, received unanimous consent from all parties. The gravity of the motion … Continue reading Ontario FASD Community: We Need You!
I'm feeling very down and defeated and alone lately. I've shared a lot about the maiden (and myself in the process) but to be fair maybe I should dig a little deeper and share more of myself. This isn't a self-pity post - at least that isn't the intent. But I haven't been too active … Continue reading One is a lonely number
As I was scrolling through the Our Sacred Breath Facebook feed, I came across an organization that reposted an article The Mighty published - which was based on a post from last year: 12 Wishes for My Daughter and FASD. In the four years I've been writing this blog, this has so far been the most … Continue reading 12 Wishes for FASD: A Year Later
It’s been a very difficult six weeks. The maiden has, on a few occasions, said she wants to kill herself. And while I’m not sure she truly understands what it would really mean if she killed herself, I know she is likely overwhelmed and wants the stress and confusion and changes to end. When we … Continue reading Hanging on to light and life.
A video clip came up on my Twitter feed this morning about results of a study Bristol University conducted looking at 70 years of studies to find evidence of outcomes for "light drinking" during pregnancy. While they agree on the evidence about the risks of heavy alcohol consumption during pregnancy, their objective was to "determine … Continue reading FASD: It’s time to Stop the Debate.
Today for many students, it's back to school after the summer break. For the maiden as well. Only she is off to College. So Day 4 on my Red Shoes Rock to Stop FASD journey is dedicated to my daughter. Because after all, she is the whole reason I started this journey. Before she came … Continue reading Red Shoes Rock Day 5: Back to School