I recently finished participation in a six-month support and education group for "older" parents and caregivers of adults with FASD called the Ontario Senior Caregiver Action Network for FASD (OSCAN). They recently released a Resource Guide and announced a new Group.
Caregivers of individuals with FASD have multiple areas of need and concern, and experience high levels of stress. This is particularly true as children age, and the transition to adulthood may be a time requiring higher supports. What if supports aren’t available? What then?
Why not try leaning instead? How are you doing? We’ve passed the one year mark for living in a global pandemic and I don’t know about you, but I have been feeling very alone and struggling to keep my anxiety down and my motivation up. I haven’t written much here about life in the pandemic. … Continue reading Are you hitting the wall during COVID-19?
I’m tired. No I’m more than tired. I’m exhausted. I’m depleted. No amount of self care (bubble baths, walks, therapy, lunch with friends, reading a book, etc.) is going to “fill my cup” and bring me back to where I need to be. I’m not alone. Many people are. Those who are caring for individuals with … Continue reading What happens when no one cares for the caregiver
The third and last question caregivers of individuals with Fetal Alcohol Spectrum Disorder were asked had to do with what would they ask if they were in the room full of FASD researchers, clinicians and professionals: What is the biggest question I have? Are they ever going to do any kind of research to come … Continue reading Day 49 of 99 Days to FASDay: Questions for Professionals
Today we look at what caregivers said when asked: What is my greatest hope for my child/adult? ...a full, happy, purposeful life with a sense of belonging. ...that one day people will understand that FASD is an invisible diagnosis for children that look “normal.” ...a good education, a good job, and knowing that they are … Continue reading Day 48 of 99 Days to FASDay: Greatest Hopes of Caregivers
Day 46 of 99 Days to FASDay brings a resource of strategies for caregivers by caregivers. The above graphic highlights only three general strategies provided in this great resource 2017 Parent Retreat Strategies put together by the FASD Network of Saskatchewan (Canada). I only highlighted three of the general strategies, but the booklet (click on link above) … Continue reading Day 46 of 99 Days to FASDay: Strategies and Self Care for FASD Caregivers