Living Well with FASD or Other Disabilities by Kenny LaJoy The description on the back of the book states: (This book) is written by someone who lives with FASD (Fetal Alcohol Spectrum Disorder) and who understands the struggles of living with this disability on a daily basis. Kenny talks about his journey towards acceptance and … Continue reading It’s OK To Be You Book Review
This is a book review of Diane Malbin’s Trying Differently Rather Than Harder - a foundational book for many caregivers of individuals with FASD. It lays the groundwork for creating a paradigm shift that is required to support people with FASD and others with brain-based conditions.
I recently finished participation in a six-month support and education group for "older" parents and caregivers of adults with FASD called the Ontario Senior Caregiver Action Network for FASD (OSCAN). They recently released a Resource Guide and announced a new Group.
Why not try leaning instead? How are you doing? We’ve passed the one year mark for living in a global pandemic and I don’t know about you, but I have been feeling very alone and struggling to keep my anxiety down and my motivation up. I haven’t written much here about life in the pandemic. … Continue reading Are you hitting the wall during COVID-19?
Mental Health and FASD As we know, over 90% of individuals with Fetal Alcohol Spectrum Disorder will also have a co-occurring mental health disorder. This article has general mental health information and FASD specific resources. The first week of October is Mental Illness Awareness Week in The USA Various countries highlight mental health awareness at different … Continue reading Mental Health Week, FASD and COVID-19
The third and last question caregivers of individuals with Fetal Alcohol Spectrum Disorder were asked had to do with what would they ask if they were in the room full of FASD researchers, clinicians and professionals: What is the biggest question I have? Are they ever going to do any kind of research to come … Continue reading Day 49 of 99 Days to FASDay: Questions for Professionals
Today we look at what caregivers said when asked: What is my greatest hope for my child/adult? ...a full, happy, purposeful life with a sense of belonging. ...that one day people will understand that FASD is an invisible diagnosis for children that look “normal.” ...a good education, a good job, and knowing that they are … Continue reading Day 48 of 99 Days to FASDay: Greatest Hopes of Caregivers
In 2019, FASD Advocate and Author Jeff Noble asked caregivers of individuals with Fetal Alcohol Spectrum Disorder to share their real life hopes and challenges. He compiled their answers to three questions in a 10 minute video, which he then showed at a conference filled with people who worked in the FASD field. It was … Continue reading Day 47 of 99 Days to FASDay: Caregiver Challenges
Day 46 of 99 Days to FASDay brings a resource of strategies for caregivers by caregivers. Today's graphic highlights only three general strategies provided in this great resource 2017 Parent Retreat Strategies put together by the FASD Network of Saskatchewan (Canada). I only highlighted three of the general strategies, but the booklet (click on the link above) … Continue reading Day 46 of 99 Days to FASDay: Strategies and Self Care for FASD Caregivers
our sacred breath 
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