What is the average life expectancy for individuals with FAS? An old research report keeps surfacing that is misleading and does not have enough data to make a broad statement. Read this post to find out about it and how you can respond. #fasd
Tag: Supporting Adults with FASD
It’s OK To Be You Book Review
Living Well with FASD or Other Disabilities by Kenny LaJoy The description on the back of the book states: (This book) is written by someone who lives with FASD (Fetal Alcohol Spectrum Disorder) and who understands the struggles of living with this disability on a daily basis. Kenny talks about his journey towards acceptance and … Continue reading It’s OK To Be You Book Review
A lesson on grief and trauma from Gabor Maté
I registered to watch a webinar tonight with David Kessler and Dr. Gabor Maté on grief and trauma. He was promoting his new book The Myth of Normal. Which was the reason I registered. It was only an hour and I planned to watch while the maiden was on a call with her worker. The … Continue reading A lesson on grief and trauma from Gabor Maté
54 Things Wrong with Gwendolyn Rogers (Book Review)
Gwendolyn sees a confidential school report listing her weaknesses. She knows she struggles. Now she has proof. She develops a list of fifty-four things to get under control. Because to go to horse camp, she must behave. And so begins the story of 11-year-old Gwen, who thinks she has only one friend, a half-brother, who her mother doesn't acknowledge, and a brain that cracks. They thought she had ADHD. If you read this book, you may think like me, it might be just be FASD.
Stress, Self-Care and Subtraction
Today is International Self-Care Day. Many caregivers have little to no time for self-care. But speaking from experience, not taking time for self-care does compound stress. In fact stress is the #1 factor impacting caregivers of individuals with FASD, a complex disability.
FASD: Trying Differently Rather Than Harder
This is a book review of Diane Malbin’s Trying Differently Rather Than Harder - a foundational book for many caregivers of individuals with FASD. It lays the groundwork for creating a paradigm shift that is required to support people with FASD and others with brain-based conditions.
Book Review: On the Wings of Success
Heartwarming Stories from the World of FASD When you first think of Fetal Alcohol Spectrum Disorder, what comes first to your mind? Is it people and strengths? We know the narrative has been tilted for too long toward negative, blame, shame and stigma. It still is. But things are changing. As awareness grows, there is … Continue reading Book Review: On the Wings of Success
Senior Caregivers Supporting Adults with FASD
I recently finished participation in a six-month support and education group for "older" parents and caregivers of adults with FASD called the Ontario Senior Caregiver Action Network for FASD (OSCAN). They recently released a Resource Guide and announced a new Group.
Expectations are Premeditated Resentments
Have you heard the phrase: expectations are just premeditated resentments? This can happen when we place expectations on our kids with FASD - but it can also happen to ourselves. I was reminded of this lately.
I’m Dreaming of a Calm Christmas
How are you holding up? At the time of the original post, only one week to go until Christmas. Then it will be over for another year. While many try to avoid the overwhelm and excitement at this time of year, it is almost impossible with messages and displays everywhere we turn. I can’t promise … Continue reading I’m Dreaming of a Calm Christmas
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