I recently finished participation in a six-month support and education group for "older" parents and caregivers of adults with FASD called the Ontario Senior Caregiver Action Network for FASD (OSCAN). They recently released a Resource Guide and announced a new Group.
Have you heard the phrase: expectations are just premeditated resentments? This can happen when we place expectations on our kids with FASD - but it can also happen to ourselves. I was reminded of this lately.
How are you holding up? For those celebrating, only one week to go until Christmas. Then it will be over for another year. While many try to avoid the overwhelm and excitement at this time of year, it is almost impossible with messages and displays everywhere we turn. I can’t promise you a calm Christmas, … Continue reading I’m Dreaming of a Calm Christmas
It's been almost two months since I wrote: When Your Child Says I Don't Feel Good. We were doing okay for about six weeks. But the complaints have started again. So I booked a follow up in person visit with our health care provider.
For anyone that had a great day today, I’m happy for you. For anyone that does not recognize the day, I honour that. For those that had a tough day, I send you much love. I had a tough day. A disappointing day that turned out differently than the plan. My daughter was going to … Continue reading Mowing Mother’s Day
Why not try leaning instead? How are you doing? We’ve passed the one year mark for living in a global pandemic and I don’t know about you, but I have been feeling very alone and struggling to keep my anxiety down and my motivation up. I haven’t written much here about life in the pandemic. … Continue reading Are you hitting the wall during COVID-19?
Reflections on a one caregiver's journey on shifting parenting perspectives and changing expectations in supporting an individuals with Fetal Alcohol Spectrum Disorder.
In Ontario (Canada) a 2016 report Nowhere to Turn for Adults with Developmental Disabilities discovered over 14,000 adults with a development disability were on wait lists for services such as: respite, housing, job support or day programs. The wait for services, depending on the type and area is three years - 20 years! My wish is all adults with a developmental disability, including those with FASD, that require support receive the services they need when they turn 18, without delay.
Robin Burgamy a librarian, FASD advocate and co-founder of KAFASD, a regional support network for FASD recently had her paper Bright Futures: Creating College Opportunities/Programs for Students with Fetal Alcohol Spectrum Disorder published in Future Review: International Journal of Transition and College and Career Success.
Written By R.J. Formanek - FASD Educator, Speaker Red Shoes Rock and Flying With Broken Wings Living on the FASD spectrum is much akin to the difference between a standard and an automatic transmission in vehicles. They both do basically the same thing, but each has to be considered, understood and operated differently. Yet you … Continue reading FASD: Presumption of Competence
our sacred breath 
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