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Tag: RJ Formanek

What is the average life expectancy for individuals with FAS?

January 11, 2023January 12, 2023Leave a comment

What is the average life expectancy for individuals with FAS? An old research report keeps surfacing that is misleading and does not have enough data to make a broad statement. Read this post to find out about it and how you can respond. #fasd

FASD: A Tale Told in 9 Ts

September 30, 2022September 30, 20224 Comments

September has been a busy month as advocates, individuals, caregivers, organizations and professionals came together to raise the profile of fetal alcohol spectrum disorder. We all know that advocacy and awareness will not stop as the month ends, but a special month does provide increased exposure. I participate in a variety of activities year round, … Continue reading FASD: A Tale Told in 9 Ts

Why do Red Shoes Rock for FASD?

June 21, 2022June 26, 20226 Comments

Do you know how red shoes became the most popular symbol for Fetal Alcohol Spectrum Disorder? Do you know when and why the Red Shoes Rock awareness campaign started?

FASD: Reflections on Perspective and Empathy

September 1, 2020September 1, 20222 Comments

by R.J. Formanek It's (almost) Wednesday, so it must be Wisdom Wednesday by R.J. He seems to write something at just about the right time. We are in the homestretch of the 99 Days to FASDay journey we started on June 1 with Day 1: 99 Days to FASDay: First Published Study Linking Prenatal Alcohol … Continue reading FASD: Reflections on Perspective and Empathy

Day 27 of 99 Days to FASDay: R.J. Formanek and the FASD Change Makers

June 28, 2017June 26, 20221 Comment

Nothing About Us Without Us was the theme for the 8th International Research Conference (2018) on Adolescents and Adults with FASD. RJ Formanek, who first began wearing red shoes, that sparked a conversation with Jodee Kulp, that turned into the Red Shoes Rock movement, was one of the key-note presenters.

FASDaySeptember 9, 2023
7 months to go.

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