For the last week of the 2018, 2019 and 2020 edition of 99 Days to 9/9 or FASDay, the voices and information belong to individuals with FASD. Day 92 & 93 are quotes from two presenters at the: 8th International Research Conference on Adolescents and Adults with FASD. Although there are thousands of published articles on … Continue reading FASD: Nothing About Us Without Us
Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.
Day 85 of 99 Days to FASDay FASD A Call to Action was the culmination of two years of intensive work by members of the Fetal Alcohol Spectrum Disorder Ontario Network of Expertise (FASD ONE) and numerous discussions among a wide variety of people over the course of several years. This document provides background information about FASD, … Continue reading What do we need to address FASD
Making Political Leaders Aware A few weeks ago my daughter and I participated in a local All Candidates Meeting for the upcoming Provincial Election in Ontario. We were joined by some new friends we have discovered through social media and our advocacy work on behalf of Fetal Alcohol Spectrum Disorder (FASD). Voters were provided with … Continue reading Dear Politicians: Adults In Crisis Waiting for Developmental Services
That is the dilemma in my head lately after reading a post from someone about why we should not share our children’s struggles in this age of social media without their permission. I understand the premise, however can a young child, especially one with a developmental disability, offer consent? Another post I read awhile back … Continue reading FASD Life: To Share or Not to Share
Since starting the 99 Days to FASDay in 2017, there have been updates to some posts and new ones added in 2018 and even more will be added in 2019. In order to update information for the 2019 Campaign, the full links were removed from this post, and each day a link and graphic will … Continue reading 99 Days to 9/9 FASDay: Master Post
Today, on this 9th day of the 9th month at the 9th hour, International FASD Awareness Day, we are encouraged to stop, reflect on and share the message of no alcohol for nine months during pregnancy (049) to bring attention to the risks of prenatal exposure to alcohol. I wondered how I would end the … Continue reading FASDay: What are you grateful for?
Today I was meant to be at a workshop by Jeff Noble (FASD Forever). However my dog had to go to the vet unexpectedly. Instead thanks to technology and FB Live I was able to watch at home while wearing my red shoes, and keeping an eye on Franklin (the dog). I was disappointed I wasn't … Continue reading Day 8 Red Shoes Rock: FASD Does NOT Define Us
There is much talk on social media lately about the words we use to talk about Fetal Alcohol Spectrum Disorder, women who drink alcohol, addiction, individuals with FASD and the messages of awareness and prevention. As anything develops over time, the language changes. Even over the four years I've written this blog, I notice my … Continue reading Day 7 Red Shoes Rock: Reflecting FASD