For the last week of the 2018 edition of 99 Days to 9/9 or FASDay, the voices and information belong to individuals with FASD. Day 93 & 94 are two quotes from two presenters at the: 8th International Research Conference on Adolescents and Adults with FASD. Although there are thousands of published articles on FASD, there … Continue reading FASD: Nothing About Us Without Us
Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.
FASD A Call to Action was the culmination of two years of intensive work by members of the Fetal Alcohol Spectrum Disorder Ontario Network of Expertise (FASD ONE) and numerous discussions among a wide variety of people over the course of several years. This document provides background information about FASD, the reasons Ontario needs a provincial strategy … Continue reading What do we need to address FASD
Over the last few months, the 99 Days to 9/9 FASDay series of infographics created in 2017 has been re-shared on Facebook, Twitter and Tumblr. Some updates were made along the way, but for Days 82, 83 and 84 I changed the focus for 2018 when I came across The Canada FASD Research Network’s CanFASD Common Messages document. … Continue reading FASD: Common Messaging
Making Political Leaders Aware A few weeks ago my daughter and I participated in a local All Candidates Meeting for the upcoming Provincial Election in Ontario. We were joined by some new friends we have discovered through social media and our advocacy work on behalf of Fetal Alcohol Spectrum Disorder (FASD). Voters were provided with … Continue reading Dear Politicians: Adults In Crisis Waiting for Developmental Services
That is the dilemma in my head lately after reading a post from someone about why we should not share our children’s struggles in this age of social media without their permission. I understand the premise, however can a young child, especially one with a developmental disability, offer consent? Another post I read awhile back … Continue reading FASD Life: To Share or Not to Share
Below are all the links to all the posts made over the last 99 days. Note that in 2018 if there was new information it will appear on the original post with the title 2018 Update. If you want to copy the graphics, all of them appear on Our Sacred Breath Pinterest Account (which you … Continue reading 99 Days to 9/9 FASDay: Master Post