September has been a busy month as advocates, individuals, caregivers, organizations and professionals came together to raise the profile of fetal alcohol spectrum disorder. We all know that advocacy and awareness will not stop as the month ends, but a special month does provide increased exposure. I participate in a variety of activities year round, … Continue reading FASD: A Tale Told in 9 Ts
Do you know how red shoes became the most popular symbol for Fetal Alcohol Spectrum Disorder? Do you know when and why the Red Shoes Rock awareness campaign started?
Today I looked at my tired, old red shoes that have seen better days. It made me think how they reflect our FASD journey. And decided they give me comfort and fit like an old friend.
by R.J. Formanek It's (almost) Wednesday, so it must be Wisdom Wednesday by R.J. He seems to write something at just about the right time. We are in the homestretch of the 99 Days to FASDay journey we started on June 1 with Day 1: 99 Days to FASDay: First Published Study Linking Prenatal Alcohol … Continue reading FASD: Reflections on Perspective and Empathy
For the last week of the 99 Days to 9/9 or FASDay, the voices and information belong to individuals with FASD. Day 92 & 93 are quotes from two presenters at the: 8th International Research Conference on Adolescents and Adults with FASD. Although there are thousands of published articles on FASD, there remains limited research specifically … Continue reading FASD: Nothing About Us Without Us
Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.
Upon discovering the FASD A Call to Action it was decided to use this as the new Day 85 of 99 Days. These recommendations can serve as an blueprint for community pillars of success. It is important to create a unified voice, but if your area does not have one yet, this is an example. … Continue reading FASD: Pillars of Success
Making Political Leaders Aware A few weeks ago my daughter and I participated in a local All Candidates Meeting for the upcoming Provincial Election in Ontario. We were joined by some new friends we have discovered through social media and our advocacy work on behalf of Fetal Alcohol Spectrum Disorder (FASD). Voters were provided with … Continue reading Dear Politicians: Adults In Crisis Waiting for Developmental Services
That is the dilemma in my head lately after reading a post from someone about why we should not share our children’s struggles in this age of social media without their permission. I understand the premise, however can a young child, especially one with a developmental disability, offer consent? Another post I read awhile back … Continue reading FASD Life: To Share or Not to Share