For the last week of the 2018 edition of 99 Days to 9/9 or FASDay, the voices and information belong to individuals with FASD. Day 93 & 94 are two quotes from two presenters at the: 8th International Research Conference on Adolescents and Adults with FASD. Although there are thousands of published articles on FASD, there … Continue reading FASD: Nothing About Us Without Us
Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.
FASD A Call to Action was the culmination of two years of intensive work by members of the Fetal Alcohol Spectrum Disorder Ontario Network of Expertise (FASD ONE) and numerous discussions among a wide variety of people over the course of several years. This document provides background information about FASD, the reasons Ontario needs a provincial strategy … Continue reading What do we need to address FASD
Over the last few months, the 99 Days to 9/9 FASDay series of infographics created in 2017 has been re-shared on Facebook, Twitter and Tumblr. Some updates were made along the way, but for Days 82, 83 and 84 I changed the focus for 2018 when I came across The Canada FASD Research Network’s CanFASD Common Messages document. … Continue reading FASD: Common Messaging
On June 1 the international movement to bring awareness to Fetal Alcohol Spectrum Disorder began with the start of Red Shoes Rock to Stop FASD and the 99 Days to FASDay. There have been some exciting new additions to this year’s campaign. Red Shoes Rock: Start the Conversation For the 5th Anniversary, a new logo, … Continue reading Red Shoes Rock and 99 Days to FASDay
That is the dilemma in my head lately after reading a post from someone about why we should not share our children’s struggles in this age of social media without their permission. I understand the premise, however can a young child, especially one with a developmental disability, offer consent? Another post I read awhile back … Continue reading FASD Life: To Share or Not to Share
As I was scrolling through the Our Sacred Breath Facebook feed, I came across an organization that reposted an article The Mighty published - which was based on a post from last year: 12 Wishes for My Daughter and FASD. In the four years I've been writing this blog, this has so far been the most … Continue reading 12 Wishes for FASD: A Year Later