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Tag: Red Shoes Rock to Stop FASD

FASD Awareness Day 2019

September 29, 2019October 6, 20191 Comment

International Fetal Alcohol Spectrum Disorder Awareness Day is held on September 9 each year. It has grown over the last 20 years. Here are some 2019 highlights.

FASD: Nothing About Us Without Us

September 1, 2018August 31, 2020Leave a comment

For the last week of the 2018, 2019 and 2020 edition of 99 Days to 9/9 or FASDay, the voices and information belong to individuals with FASD. Day 92 & 93 are quotes from two presenters at the: 8th International Research Conference on Adolescents and Adults with FASD. Although there are thousands of published articles on … Continue reading FASD: Nothing About Us Without Us

FASD: The Invisible Disability

August 29, 2018August 28, 20201 Comment

Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.

What do we need to address FASD

August 25, 2018August 21, 2020Leave a comment

Day 85 of 99 Days to FASDay FASD A Call to Action was the culmination of two years of intensive work by members of the Fetal Alcohol Spectrum Disorder Ontario Network of Expertise (FASD ONE) and numerous discussions among a wide variety of people over the course of several years. This document provides background information about FASD, … Continue reading What do we need to address FASD

FASD: Common Messaging

August 22, 2018August 23, 20203 Comments

Over the last few months, the 99 Days to 9/9 FASDay series of infographics created in 2017 has been re-shared on Facebook, Twitter and Tumblr. Some updates were made along the way, but for Days 82, 83 and 84 I changed the focus for 2018 (and continued to use these in 2019) when I came across … Continue reading FASD: Common Messaging

FASD Life: To Share or Not to Share

May 20, 2018May 20, 20182 Comments

That is the dilemma in my head lately after reading a post from someone about why we should not share our children’s struggles in this age of social media without their permission. I understand the premise, however can a young child, especially one with a developmental disability, offer consent? Another post I read awhile back … Continue reading FASD Life: To Share or Not to Share

12 Wishes for FASD: A Year Later

December 29, 2017June 24, 2022Leave a comment

As I was scrolling through the Our Sacred Breath Facebook feed, I came across an organization that reposted an article The Mighty published - which was based on a post from last year: 12 Wishes for My Daughter and FASD. In the four years I've been writing this blog, this has so far been the most … Continue reading 12 Wishes for FASD: A Year Later

99 Days to 9/9 FASDay: Master Post

September 9, 2017May 30, 20224 Comments

Since starting the 99 Days to FASDay in 2017, there have been updates to some posts and new ones added in 2018 and even more will be added in 2019. In order to update information for the 2019 Campaign, the full links were removed from this post, and each day a link and graphic will … Continue reading 99 Days to 9/9 FASDay: Master Post

FASDay: What are you grateful for?

September 9, 2017September 9, 20171 Comment

Today, on this 9th day of the 9th month at the 9th hour, International FASD Awareness Day, we are encouraged to stop, reflect on and share the message of no alcohol for nine months during pregnancy (049) to bring attention to the risks of prenatal exposure to alcohol. I wondered how I would end the … Continue reading FASDay: What are you grateful for?

Day 8 Red Shoes Rock: FASD Does NOT Define Us

September 8, 2017September 8, 2017Leave a comment

Today I was meant to be at a workshop by Jeff Noble (FASD  Forever). However my dog had to go to the vet unexpectedly. Instead thanks to technology and FB Live I was able to watch at home while wearing my red shoes, and keeping an eye on Franklin (the dog). I was disappointed I wasn't … Continue reading Day 8 Red Shoes Rock: FASD Does NOT Define Us

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