International Fetal Alcohol Spectrum Disorder Awareness Day is held on September 9 each year. It has grown over the last 20 years. Here are some 2019 highlights.
Tag: Red Shoes Rock to Stop FASD
FASD: Nothing About Us Without Us
For the last week of the 2018, 2019 and 2020 edition of 99 Days to 9/9 or FASDay, the voices and information belong to individuals with FASD. Day 92 & 93 are quotes from two presenters at the: 8th International Research Conference on Adolescents and Adults with FASD. Although there are thousands of published articles on … Continue reading FASD: Nothing About Us Without Us
FASD: The Invisible Disability
Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.
What do we need to address FASD
Day 85 of 99 Days to FASDay FASD A Call to Action was the culmination of two years of intensive work by members of the Fetal Alcohol Spectrum Disorder Ontario Network of Expertise (FASD ONE) and numerous discussions among a wide variety of people over the course of several years. This document provides background information about FASD, … Continue reading What do we need to address FASD
FASD: Common Messaging
Over the last few months, the 99 Days to 9/9 FASDay series of infographics created in 2017 has been re-shared on Facebook, Twitter and Tumblr. Some updates were made along the way, but for Days 82, 83 and 84 I changed the focus for 2018 (and continued to use these in 2019) when I came across … Continue reading FASD: Common Messaging
FASD Life: To Share or Not to Share
That is the dilemma in my head lately after reading a post from someone about why we should not share our children’s struggles in this age of social media without their permission. I understand the premise, however can a young child, especially one with a developmental disability, offer consent? Another post I read awhile back … Continue reading FASD Life: To Share or Not to Share
12 Wishes for FASD: A Year Later
As I was scrolling through the Our Sacred Breath Facebook feed, I came across an organization that reposted an article The Mighty published - which was based on a post from last year: 12 Wishes for My Daughter and FASD. In the four years I've been writing this blog, this has so far been the most … Continue reading 12 Wishes for FASD: A Year Later
99 Days to 9/9 FASDay: Master Post
Since starting the 99 Days to FASDay in 2017, there have been updates to some posts and new ones added in 2018 and even more will be added in 2019. In order to update information for the 2019 Campaign, the full links were removed from this post, and each day a link and graphic will … Continue reading 99 Days to 9/9 FASDay: Master Post
FASDay: What are you grateful for?
Today, on this 9th day of the 9th month at the 9th hour, International FASD Awareness Day, we are encouraged to stop, reflect on and share the message of no alcohol for nine months during pregnancy (049) to bring attention to the risks of prenatal exposure to alcohol. I wondered how I would end the … Continue reading FASDay: What are you grateful for?
Day 8 Red Shoes Rock: FASD Does NOT Define Us
Today I was meant to be at a workshop by Jeff Noble (FASD Forever). However my dog had to go to the vet unexpectedly. Instead thanks to technology and FB Live I was able to watch at home while wearing my red shoes, and keeping an eye on Franklin (the dog). I was disappointed I wasn't … Continue reading Day 8 Red Shoes Rock: FASD Does NOT Define Us
our sacred breath 
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