Have you heard the phrase: expectations are just premeditated resentments? This can happen when we place expectations on our kids with FASD - but it can also happen to ourselves. I was reminded of this lately.
How are you holding up? For those celebrating, only one week to go until Christmas. Then it will be over for another year. While many try to avoid the overwhelm and excitement at this time of year, it is almost impossible with messages and displays everywhere we turn. I can’t promise you a calm Christmas, … Continue reading I’m Dreaming of a Calm Christmas
It's been almost two months since I wrote: When Your Child Says I Don't Feel Good. We were doing okay for about six weeks. But the complaints have started again. So I booked a follow up in person visit with our health care provider.
Reflections on a one caregiver's journey on shifting parenting perspectives and changing expectations in supporting an individuals with Fetal Alcohol Spectrum Disorder.
I'm feeling very down and defeated and alone lately. I've shared a lot about the maiden (and myself in the process) but to be fair maybe I should dig a little deeper and share more of myself. This isn't a self-pity post - at least that isn't the intent. But I haven't been too active … Continue reading One is a lonely number
As I was scrolling through the Our Sacred Breath Facebook feed, I came across an organization that reposted an article The Mighty published - which was based on a post from last year: 12 Wishes for My Daughter and FASD. In the four years I've been writing this blog, this has so far been the most … Continue reading 12 Wishes for FASD: A Year Later
Using the Neurobehavioral Approach We return to another series of posts featuring the NB Approach for raising or supporting a person with FASD. You can find the first series of posts here: Day 12 of 99 Days to FASDay. Rather than posting individually over the last few days here on WordPress, I combined the posts into … Continue reading Days 75-80 of 99 Days to FASDay: Neurobehavioral Approach to FASD
In 2019, FASD Advocate and Author Jeff Noble asked caregivers of individuals with Fetal Alcohol Spectrum Disorder to share their real life hopes and challenges. He compiled their answers to three questions in a 10 minute video, which he then showed at a conference filled with people who worked in the FASD field. It was … Continue reading Day 47 of 99 Days to FASDay: Caregiver Challenges
Day 46 of 99 Days to FASDay brings a resource of strategies for caregivers by caregivers. The above graphic highlights only three general strategies provided in this great resource 2017 Parent Retreat Strategies put together by the FASD Network of Saskatchewan (Canada). I only highlighted three of the general strategies, but the booklet (click on link above) … Continue reading Day 46 of 99 Days to FASDay: Strategies and Self Care for FASD Caregivers
Dr. Mansfield Mela and a team of 12 international experts have developed the first medication algorithm (or decision tree) for psychotropic medications for Fetal Alcohol Spectrum Disorder.