Living Well with FASD or Other Disabilities by Kenny LaJoy The description on the back of the book states: (This book) is written by someone who lives with FASD (Fetal Alcohol Spectrum Disorder) and who understands the struggles of living with this disability on a daily basis. Kenny talks about his journey towards acceptance and … Continue reading It’s OK To Be You Book Review
I registered to watch a webinar tonight with David Kessler and Dr. Gabor Maté on grief and trauma. He was promoting his new book The Myth of Normal. Which was the reason I registered. It was only an hour and I planned to watch while the maiden was on a call with her worker. The … Continue reading A lesson on grief and trauma from Gabor Maté
Gwendolyn sees a confidential school report listing her weaknesses. She knows she struggles. Now she has proof. She develops a list of fifty-four things to get under control. Because to go to horse camp, she must behave. And so begins the story of 11-year-old Gwen, who thinks she has only one friend, a half-brother, who her mother doesn't acknowledge, and a brain that cracks. They thought she had ADHD. If you read this book, you may think like me, it might be just be FASD.
Today is International Self-Care Day. Many caregivers have little to no time for self-care. But speaking from experience, not taking time for self-care does compound stress. In fact stress is the #1 factor impacting caregivers of individuals with FASD, a complex disability.
This is a book review of Diane Malbin’s Trying Differently Rather Than Harder - a foundational book for many caregivers of individuals with FASD. It lays the groundwork for creating a paradigm shift that is required to support people with FASD and others with brain-based conditions.
Have you heard the phrase: expectations are just premeditated resentments? This can happen when we place expectations on our kids with FASD - but it can also happen to ourselves. I was reminded of this lately.
How are you holding up? At the time of the original post, only one week to go until Christmas. Then it will be over for another year. While many try to avoid the overwhelm and excitement at this time of year, it is almost impossible with messages and displays everywhere we turn. I can’t promise … Continue reading I’m Dreaming of a Calm Christmas
It's been almost two months since I wrote: When Your Child Says I Don't Feel Good. We were doing okay for about six weeks. But the complaints have started again. So I booked a follow up in person visit with our health care provider.
Reflections on a one caregiver's journey on shifting parenting perspectives and changing expectations in supporting an individuals with Fetal Alcohol Spectrum Disorder.
by R.J. Formanek It's (almost) Wednesday, so it must be Wisdom Wednesday by R.J. He seems to write something at just about the right time. We are in the homestretch of the 99 Days to FASDay journey we started on June 1 with Day 1: 99 Days to FASDay: First Published Study Linking Prenatal Alcohol … Continue reading FASD: Reflections on Perspective and Empathy