Have you heard the phrase: expectations are just premeditated resentments? This can happen when we place expectations on our kids with FASD - but it can also happen to ourselves. I was reminded of this lately.
Sometimes as caregivers we forget to get curious or are tired or busy until things begin to escalate. Or we get complacent (or hopeful) that when things are going well we can step back a bit. I was reminded of this recently when the maiden came to me complaining about nightmares and not sleeping well.
Sharing (with permission) a wonderful piece about parenting a neurodivergent child and Groundhog Day by Lisa MacColl (Motherwell Magazine). While there is no mention of FASD, these are definitely similar experiences to supporting an individual with Fetal Alcohol Spectrum Disorder which is why I asked to share. Groundhog Day, February 2nd, conjures any number of … Continue reading Parenting, Groundhog Day and FASD
Today (July 24) is International Self-Care Day I’d never heard about it before yesterday when I was looking on the Employee Assistance Program (EAP) website at work. A bit timely since self care is, and has been, pretty low on my radar lately. Many people in a caregiver role do not have time for self … Continue reading Self Care and Messages from the Universe in the FASD Lane
As I was scrolling through the Our Sacred Breath Facebook feed, I came across an organization that reposted an article The Mighty published - which was based on a post from last year: 12 Wishes for My Daughter and FASD. In the four years I've been writing this blog, this has so far been the most … Continue reading 12 Wishes for FASD: A Year Later
Using the Neurobehavioral Approach We return to another series of posts featuring the NB Approach for raising or supporting a person with FASD. You can find the first series of posts here: Day 12 of 99 Days to FASDay. Rather than posting individually over the last few days here on WordPress, I combined the posts into … Continue reading Days 75-80 of 99 Days to FASDay: Neurobehavioral Approach to FASD
In 2019, FASD Advocate and Author Jeff Noble asked caregivers of individuals with Fetal Alcohol Spectrum Disorder to share their real life hopes and challenges. He compiled their answers to three questions in a 10 minute video, which he then showed at a conference filled with people who worked in the FASD field. It was … Continue reading Day 47 of 99 Days to FASDay: Caregiver Challenges
Day 46 of 99 Days to FASDay brings a resource of strategies for caregivers by caregivers. The above graphic highlights only three general strategies provided in this great resource 2017 Parent Retreat Strategies put together by the FASD Network of Saskatchewan (Canada). I only highlighted three of the general strategies, but the booklet (click on link above) … Continue reading Day 46 of 99 Days to FASDay: Strategies and Self Care for FASD Caregivers
Dr. Mansfield Mela and a team of 12 international experts have developed the first medication algorithm (or decision tree) for psychotropic medications for Fetal Alcohol Spectrum Disorder.
A recent news article about the results of a four-year follow-up of a randomized controlled trial of choline for neurodevelopment in fetal alcohol spectrum disorder caused quite a stir in the FASD world. Find out the details from the study and lead researcher Dr. Wozniak.