Living Well with FASD or Other Disabilities by Kenny LaJoy The description on the back of the book states: (This book) is written by someone who lives with FASD (Fetal Alcohol Spectrum Disorder) and who understands the struggles of living with this disability on a daily basis. Kenny talks about his journey towards acceptance and … Continue reading It’s OK To Be You Book Review
I registered to watch a webinar tonight with David Kessler and Dr. Gabor Maté on grief and trauma. He was promoting his new book The Myth of Normal. Which was the reason I registered. It was only an hour and I planned to watch while the maiden was on a call with her worker. The … Continue reading A lesson on grief and trauma from Gabor Maté
Gwendolyn sees a confidential school report listing her weaknesses. She knows she struggles. Now she has proof. She develops a list of fifty-four things to get under control. Because to go to horse camp, she must behave. And so begins the story of 11-year-old Gwen, who thinks she has only one friend, a half-brother, who her mother doesn't acknowledge, and a brain that cracks. They thought she had ADHD. If you read this book, you may think like me, it might be just be FASD.
This is a book review of Diane Malbin’s Trying Differently Rather Than Harder - a foundational book for many caregivers of individuals with FASD. It lays the groundwork for creating a paradigm shift that is required to support people with FASD and others with brain-based conditions.
Have you heard the phrase: expectations are just premeditated resentments? This can happen when we place expectations on our kids with FASD - but it can also happen to ourselves. I was reminded of this lately.
Sometimes as caregivers we forget to get curious or are tired or busy until things begin to escalate. Or we get complacent (or hopeful) that when things are going well we can step back a bit. I was reminded of this recently when the maiden came to me complaining about nightmares and not sleeping well.
Sharing (with permission) a wonderful piece about parenting a neurodivergent child and Groundhog Day by Lisa MacColl (Motherwell Magazine). While there is no mention of FASD, these are definitely similar experiences to supporting an individual with Fetal Alcohol Spectrum Disorder which is why I asked to share. Groundhog Day, February 2nd, conjures any number of … Continue reading Parenting, Groundhog Day and FASD
Today (July 24) is International Self-Care Day I’d never heard about it before yesterday when I was looking on the Employee Assistance Program (EAP) website at work. A bit timely since self care is, and has been, pretty low on my radar lately. Many people in a caregiver role do not have time for self … Continue reading Self Care and Messages from the Universe in the FASD Lane
As I was scrolling through the Our Sacred Breath Facebook feed, I came across an organization that reposted an article The Mighty published - which was based on a post from last year: 12 Wishes for My Daughter and FASD. In the four years I've been writing this blog, this has so far been the most … Continue reading 12 Wishes for FASD: A Year Later
Using the Neurobehavioral Approach We return to another series of posts featuring the NB Approach for raising or supporting a person with FASD. You can find the first series of posts here: Day 12 of 99 Days to FASDay. Rather than posting individually over the last few days here on WordPress, I combined the posts into … Continue reading Days 76-80 of 99 Days to FASDay: Neurobehavioral Approach to FASD