My daughter said she wants to live with me forever. When she was young, I told her she could live with me for as long as she needed to. She tells me she is terrified of living without me – that she does not know how she will manage. While she was not ready to … Continue reading An FASD Wish: Confidence in her Future
School is geared for the masses. If we want an inclusive society and promote education as a right, then students should be taught in a way that supports and accommodates their development. FASD is not recognized in our school system as a condition that qualifies for support, be that an Educational Assistant (EA) or Child … Continue reading 2020 Wishes for My Daughter and FASD: #4 Recognition in the School System
One of the keys to helping someone with FASD is to meet them “where they are” not where society thinks they should be. I’ve had discussions with countless people who offer well-meaning but ill-informed advice, such as, “When I was 18, I was in college, had a job, was living on my own, or in … Continue reading FASD Acceptance and Understanding (Wish 3/12)
While FASD is a physical disability with over 420 co-occurring conditions, the part of the body that connects this, the brain, is invisible to our eyes. Very few people with FASD have any visible characteristics. When people can’t see a disability, people are quick to judge.
In 2016 I wrote a blog post called 12 Wishes for FASD and My Daughter. It was a combination of things I wanted in terms of FASD awareness and things I wanted for my daughter. I did update it in 2017 - 12 Wishes A Year Later - but have not been back to look at it through the lens of another 3 years. Over the next 12 days I will update for the 2020 edition. Today we look at friendships.
Some advice from an employer's perspective when interviewing, hiring and supporting individuals with FASD in workplace.
Robin Burgamy a librarian, FASD advocate and co-founder of KAFASD, a regional support network for FASD recently had her paper Bright Futures: Creating College Opportunities/Programs for Students with Fetal Alcohol Spectrum Disorder published in Future Review: International Journal of Transition and College and Career Success.
The following is from the Hansard Transcript November 3, 2020 Education Statute Law Amendment Act (Fetal Alcohol Spectrum Disorder), 2020 / Loi de 2020 modifiant des lois en ce qui concerne l’éducation (ensemble des troubles causés par l’alcoolisation foetale) Ms. Wynne moved second reading of the following bill: Bill 172, An Act in relation to … Continue reading FASD Education Bill 172 passes 2nd Reading
by R.J. Formanek RJ Red Shoe Shopping in 2018 Everyone dealing with FASD in some way has had to deal with certain aspects of grief and loss, and that includes us, on the spectrum as well. It's all part of the package. I answered a post earlier, but wanted to share the general idea that … Continue reading Grief and Loss for People with FASD
The maiden and I went on a little road trip last week to pick up some rain gutters someone was giving away. I asked her to come along as I was going to have to the hatch open on the back of the car, with them hanging out, and I just wanted her to hang … Continue reading Connecting with Gutters