According to Understanding the Occurrence of Secondary Disabilities with FAS and FAE Final Report (1996) 60% of students with FASD aged 12 or older have had a disrupted school experience. Despite 14 years since its release there are still educators and the system who do not understand FASD.
I recently saw the graphic below, of a sloth riding on a turtle’s back, saying “too fast”. I was going to share it on my Facebook page, with a short comment about how we may need to slow down in order to accommodate an individual with Fetal Alcohol Spectrum Disorder. Either in what we say, how … Continue reading FASD: Lessons in Processing Speed from the Turtle, Sloth and Snail
Written By R.J. Formanek - FASD Educator, Speaker Red Shoes Rock and Flying With Broken Wings Living on the FASD spectrum is much akin to the difference between a standard and an automatic transmission in vehicles. They both do basically the same thing, but each has to be considered, understood and operated differently. Yet you … Continue reading FASD: Presumption of Competence
According to Merriam-Webster: Definition of self-regulation the act or condition or an instance of regulating oneself or itself: such as; Self Regulation: the bringing of oneself or itself into a state of order, method, or uniformity emotional self-regulation. We know individuals with Fetal Alcohol Spectrum Disorder often struggle with self-regulation, which can lead to many … Continue reading Self Regulation in FASD and me
As all the posts were appearing today, I couldn’t help but reflect on FASD and the continuing stigma and misunderstanding that not only my daughter faces but women caregivers and birth moms. There were posts that said women deserve to be recognized every day. Yes they do. But I also think having different ways to … Continue reading International Women’s Day and FASD
My diagnosis came at 47 after a lifetime of hit and miss, not really understanding people around me and considering myself as an alien in a strange land. I had a career, relationships, family of my own... but I kept ending up at a therapist trying vainly to understand. While I did do any number of things that … Continue reading The Monster Under the Bed (FASD)
I’m tired. No I’m more than tired. I’m exhausted. I’m depleted. No amount of self care (bubble baths, walks, therapy, lunch with friends, reading a book, etc.) is going to “fill my cup” and bring me back to where I need to be. I’m not alone. Many people are. Those who are caring for individuals with … Continue reading What happens when no one cares for the caregiver
In an effort to improve outcomes for those with FASD and ADHD, Dr. J. Kapalanga, Principal Investigator with Grey Bruce Health Services (Ontario) and Western University is calling for assistance in the study of clinical and genetic links between FASD and ADHD. This study will examine the clinical and genetic links between FASD and ADHD. … Continue reading Participants Required (Ontario) for FASD / ADHD Study
International Fetal Alcohol Spectrum Disorder Awareness Day is held on September 9 each year. It has grown over the last 20 years. Here are some 2019 highlights.
An interesting discussion came about a couple weeks ago on the language and word choices used to describe people with Fetal Alcohol Spectrum Disorder as well as the experience of having FASD. I asked Maggie if I could share her post which puts the debate into perspective. For me personally before I came to accept … Continue reading FASD Sufferers or FASD Superheroes
