September has been a busy month as advocates, individuals, caregivers, organizations and professionals came together to raise the profile of fetal alcohol spectrum disorder. We all know that advocacy and awareness will not stop as the month ends, but a special month does provide increased exposure. I participate in a variety of activities year round, … Continue reading FASD: A Tale Told in 9 Ts
Trigger Warning: There are details in this post some may find disturbing and distressing. On Saturday, January 15, 2022, Saturday Night Live aired a skit called Winter Formal. The characters spend 4 minutes and 19 seconds promoting their winter formal shop and making derogatory comments about the son. Close to the end, the mother says … Continue reading SNL skit Winter Formal: Humour or ableist?
Looking for some inspiration or ideas for activities to do leading up to #FASDay? How about a game of Bingo?
I found this Nelson Mandela quote from 1997. The true character of a society is revealed in how it treats its children. A year before my daughter was born. In her 22 years of life we still have quite a ways to go but even more so for people with disabilities. Many are still discriminated against, … Continue reading Mid-life Advocacy Crisis or Dark Night of the Soul
Dear Ministers: I understand what a tough job your Ministries have trying to balance priorities - however I wonder can you tell me why Autism continues to be favoured over all other developmental disabilities? Do not all people with a developmental disability deserve fairness and equality and to live their best lives? I have had … Continue reading A Letter For Our Provincial Ministers
Over half a million with FASD in Ontario wait for services and direct financial supports as the government continues to deny diagnostic services and supports for 4% of the population (ONTARIO) - The families and 537,939 people with Fetal Alcohol Spectrum Disorder, many not on waitlists because there are few programs and services (including an … Continue reading When Will Ontario Take Decisive Action to Help with FASD
From a series of posts on Facebook by the FASD Network of Saskatchewan (Canada) An advocate is anyone who speaks up on behalf of others or a cause. Becoming an advocate can change lives. Advocating can happen every day with small changes to what we do or say. 1. Use Person First Language The first … Continue reading 6 Ways to Advocate for FASD
It’s been awhile since I’ve written. A lot of things in my personal life have taken my energy, while trying to support my daughter and advocate for FASD. I must admit I’m feeling a bit stuck. I don’t know where to go from here. We need so much. We need recognition of FASD as a … Continue reading FASD: Where To Now
Update: Although Bill 191 was not presented for 2nd Reading on February 20 there is still time - check back by Saturday for updated info and link for a petition! We are at a critical point now advocating to get the Minister of Education to bring forward Bill 191 to amend the Education Act to … Continue reading Ten Days to Make FASD History in Ontario
Continuing with the suggestions to change our language around FASD, Days 23 - 25 of 99 Days to FASDay focus on how to change the conversation when we talk about alcohol, away from the shame and blame. I don't know about you, but I'm 50/50 on having used these terms in the past. I've likely … Continue reading Days 23-25: Talking About Alcohol Use and Stamping Out Stigma