by R.J. Formanek RJ Red Shoe Shopping in 2018 Everyone dealing with FASD in some way has had to deal with certain aspects of grief and loss, and that includes us, on the spectrum as well. It's all part of the package. I answered a post earlier, but wanted to share the general idea that … Continue reading Grief and Loss for People with FASD
The maiden and I went on a little road trip last week to pick up some rain gutters someone was giving away. I asked her to come along as I was going to have to the hatch open on the back of the car, with them hanging out, and I just wanted her to hang … Continue reading Connecting with Gutters
My diagnosis came at 47 after a lifetime of hit and miss, not really understanding people around me and considering myself as an alien in a strange land. I had a career, relationships, family of my own... but I kept ending up at a therapist trying vainly to understand. While I did do any number of things that … Continue reading The Monster Under the Bed (FASD)
Although since my last personal post, One is a lonely number, things are still in a state of uncertainty in my life, (no luck yet on the job front, my last paycheque was not entered into the system, still waiting for Record of Employment so I can collect Employment Insurance until I find a job, and … Continue reading Finding Calm in the Chaos of Life
I'm feeling very down and defeated and alone lately. I've shared a lot about the maiden (and myself in the process) but to be fair maybe I should dig a little deeper and share more of myself. This isn't a self-pity post - at least that isn't the intent. But I haven't been too active … Continue reading One is a lonely number
As I was scrolling through the Our Sacred Breath Facebook feed, I came across an organization that reposted an article The Mighty published - which was based on a post from last year: 12 Wishes for My Daughter and FASD. In the four years I've been writing this blog, this has so far been the most … Continue reading 12 Wishes for FASD: A Year Later
Nine Lessons Learned: Supporting Success for Adults with FASD This post combines the last week's worth of posts. The information was discovered in the guidebook Supporting Success for Adults with Fetal Alcohol Spectrum Disorder (FASD) published by Community Living British Columbia (Canada). Rather than posting the graphics for each day on WordPress, I decided … Continue reading Day 67-73 of 99 Days to FASDay: Supporting Adults with FASD
Today we wrap up information from Understanding the Occurrence of Secondary Disabilities by looking at employment experiences for adults with FAS and FAE (diagnosis used in Study), as well as provide information and links to help with employment. To begin on a positive note, the Study found the following protective factors for successful employment: Adaptive … Continue reading Day 65 of 99 Days to FASDay: FASD and Work
Day 28, 29, and 30 of 99 Days to FASDay brings some advice from adults with FASD. When the maiden turned 18, my focus changed from looking for advice for children and teenagers to advice for adults. In particular, I have been trying to find advice from adults about the lived experience with FASD. I … Continue reading Day 28-30 of 99 Days to FASDay: FASD Truths
Nothing About Us Without Us was the theme for the 8th International Research Conference (2018) on Adolescents and Adults with FASD. RJ Formanek, who first began wearing red shoes, that sparked a conversation with Jodee Kulp, that turned into the Red Shoes Rock movement, was one of the key-note presenters.
