Living Well with FASD or Other Disabilities by Kenny LaJoy The description on the back of the book states: (This book) is written by someone who lives with FASD (Fetal Alcohol Spectrum Disorder) and who understands the struggles of living with this disability on a daily basis. Kenny talks about his journey towards acceptance and … Continue reading It’s OK To Be You Book Review
I registered to watch a webinar tonight with David Kessler and Dr. Gabor Maté on grief and trauma. He was promoting his new book The Myth of Normal. Which was the reason I registered. It was only an hour and I planned to watch while the maiden was on a call with her worker. The … Continue reading A lesson on grief and trauma from Gabor Maté
In Ontario (Canada) a 2016 report Nowhere to Turn for Adults with Developmental Disabilities discovered over 14,000 adults with a development disability were on wait lists for services such as: respite, housing, job support or day programs. The wait for services, depending on the type and area is three years - 20 years! My wish is all adults with a developmental disability, including those with FASD, that require support receive the services they need when they turn 18, without delay.
I'm feeling very down and defeated and alone lately. I've shared a lot about the maiden (and myself in the process) but to be fair maybe I should dig a little deeper and share more of myself. This isn't a self-pity post - at least that isn't the intent. But I haven't been too active … Continue reading One is a lonely number
As I was scrolling through the Our Sacred Breath Facebook feed, I came across an organization that reposted an article The Mighty published - which was based on a post from last year: 12 Wishes for My Daughter and FASD. In the four years I've been writing this blog, this has so far been the most … Continue reading 12 Wishes for FASD: A Year Later
Nine Lessons Learned: Supporting Success for Adults with FASDThis post combines the last week's worth of posts. The information was discovered in the guidebook Supporting Success for Adults with Fetal Alcohol Spectrum Disorder (FASD) published by Community Living British Columbia (Canada). Rather than posting the graphics for each day on WordPress, I decided to … Continue reading Day 67-75 of 99 Days to FASDay: Supporting Adults with FASD
On April 23, the Toronto Star reported a story about Marc Leroux, the father of a daughter with a developmental disability, who has launched a $110-million class action lawsuit against the Ontario government for failing to eliminate the years-long wait list for support services. In Ontario, once a child turns 18 all services stop and the system … Continue reading $110 Million Class Action Lawsuit Filed in Ontario on behalf of People with Developmental Disabilities
Hopeful is a word filling my head lately. As the maiden moves deeper into living and learning to navigate the world as an adult with Fetal Alcohol Spectrum Disorder (FASD), I worry about what the future holds for her but try to remain hopeful that it will be a more accepting place for her. The above … Continue reading Navigating life as an adult with FASD
The Ontario Ombudsman released a report Nowhere to Turn in August 2016. It was the result of an investigation into the Ontario Ministry of Community and Social Services response to situations of crisis involving adults with developmental disabilities. At the conclusion of the Report are 60 recommendations to address the current state of services for this segment … Continue reading Nowhere to Turn for Adults with Developmental Disabilities
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