fasd on the web

Websites and Resources:

Our Sacred Breath Redbubble Shop

You will find a variety of t-shirts and gear with FASD or Red Shoes Rock. This is an international site that ships direct to you. Your purchase will support an adult with FASD who is learning about running a small business.

Our Sacred Breath Social Media

Social Media icons are on each page that will take you directly to the sites. I haven’t been as active on Tumblr or Pinterest lately, but it still has some good posts. I will likely start sharing the new 99 Days graphics. I am most active on Twitter and Facebook with a little bit of Instagram. It’s hard to keep so many sites going however!

Canada

Public Health Agency of Canada

This website provides information on FASD and its effects, current funded projects and funding opportunities, resources, and links to other FASD websites.

Canada FASD Research Network

CanFASD’s mission is to produce and maintain national, collaborative research designed for sharing with all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder.

FASD Ontario

FASD Ontario, is a bilingual site of accurate, up-to-date Fetal Alcohol Spectrum Disorder (FASD) information for Ontario. This website will help you find the closest available FASD services, learn about a variety of FASD topics, read the latest FASD related news and find FASD training. It was developed by Health Nexus with funding provided by the Government of Ontario.

FASworld

Not as active lately, and now there is a warning message that pops up, so for now I am not providing the link. This is the organization founded by Brian Philcox and his wife Bonnie Buxton. I know he is in the process of finding new Directors to take over.

Kids Brain Health Network

Kids Brain Health Network involves individuals and organizations passionate about helping children with neurodevelopmental disorders: parents, community groups, researchers, health care professionals, businesses, and governments.

USA

Proof Alliance

formerly: Minnesota Organization on Fetal Alcohol Syndrome (MOFAS)

Like other groups specific to a geographical area, MOFAS shares a lot of resources and information anyone can access.

FASD United

Formerly NOFAS (National Organization on Fetal Alcohol Syndrome)

FASD United supports individuals and families living with FASD through referrals, advocacy, training, information dissemination, and a wide range of diverse initiatives and resources. FASD United educates the public, practitioners, and policymakers about the risk of prenatal exposure to alcohol, drugs, and other substances known to harm fetal development.

UNITED KINGDOM

National Organisation for FASD

Formerly: NOFAS-UK  (The National Organisation for Foetal Alcohol Syndrome-UK)

National FASD is dedicated to supporting people affected by Foetal Alcohol Spectrum Disorder (FASD), their families and communities. It promotes education for professionals and public awareness about the risks of alcohol consumption during pregnancy.  It is a source for information on FASD to the general public, press and to medical professionals.

Me & My FASD

This is a FANTASTIC site! National FASD developed this website as part of a “Me and My FASD toolkit that is a central part of a partnership project between Seashell and National FASD.  It is for young people with FASD. It has information about FASD and things that can help. It was created in the UK working with a very experienced team including medical professionals, teachers, parents and most importantly an advisory team of adults and young people with FASD.

AUSTRALIA

NOFASD Australia

NOFASD Australia is a family-focused organisation and is the essential bridge linking those with lived experience with researchers and clinicians.

Specialized Websites:

FASD evaluations, methods, tools

This website compiles evaluation frameworks, methods, tools, and indicators of success to support the work of community-based FASD prevention programs for pregnant women and new mothers, and supportive intervention programs for adults and older youth with FASD.

International FASD Awareness Day

There are several ways to find out about Int’l FASDay …. you can do a google or web search and investigate various sources, check out FASDay which has some great information and is a site sponsored by one of the founders of FASDay, check out OSB blog post Day 50 of 99 Days: The birth of FASDay which provides links to various organizations around the world with ideas and resources or visit Red Shoes Rock for information on this annual awareness campaign leading up to FASDay.

Drymester

DRYMESTER is a health awareness campaign for Greater Manchester, highlighting the risks of drinking alcohol during pregnancy and the impact of Foetal Alcohol Spectrum Disorder (FASD). It was launched in 2019 to encourage pregnant women or those planning pregnancy to make every trimester a #DRYMESTER and go alcohol-free for the entire nine months of pregnancy. Mums-to-be can nominate partners, family and friends to get involved and join them in one alcohol-free trimester each.

FASD Learning / Courses:

The FASD Collaborative Project

The FASD Collaborative Project was created in late 2020 from a discussion within the FASD United Affiliate Network in the United States when a need was identified to increase effective support and evidence-based training at a national level related to FASD. FASD organizations from around the globe joined forces under the notion that if we each “give a little,” we can create more dynamic FASD systems of care internationally. There are over 30 organizations participating in the 2021-2022 academic year of offerings. 

This collaborative also currently offers 21 online FASD support and information-sharing groups to birthmothers, birth families, self-advocates, and caregivers internationally.  As well as special interest groups. There is no cost to attend any of the webinars and certificates of completion are available.

The FASD Learning Series

The FASD Learning Series (government of Alberta, Canada) helps individuals with FASD and their caregivers to learn more about FASD and how to support a person with FASD. The webcast and videoconference educational sessions cover a broad range of topics that target both urban and rural audiences.

Provincial Outreach Program for Fetal Alcohol Spectrum Disorder (POPFASD)

Series of E-learning videos

FASD and Justice

This Canadian site is designed for justice system professionals and others who want to understand more about FASD. It provides information and resources about Fetal Alcohol Spectrum Disorder (FASD), including background information, case law, legal resources and strategies for effective intervention.

Foundations in FASD

CanFASD launched Foundations in FASD  – a basic training course intended for everyone that will come into contact with individuals with FASD including all sectors of work, families, individuals with FASD, spouses, and the general public. It was free when first introduced. I believe it’s only $25.00 CDN.

This foundational level training program provides the perspective of individuals who have FASD, is evidence-based, employs a culturally sensitive approach, and is presented in a way that is responsive to the learners needs. This online basic training course will take on average two hours to complete.

Level 1 training will provide knowledge and understanding of:

  • an overview of FASD assessment and diagnosis in Canada
  • an introduction to FASD interventions and promising approaches
  • the effects of prenatal alcohol exposure on the fetus
  • the impact of alcohol on brain development
  • issues related to stigma and FASD
  • strategies for prevention and support
  • barriers to prevention and support
  • the signs and symptoms of FASD across the lifespan

A certificate will be provided to each participant upon completion.

FASD for School Staff Level II

Practical Strategies for the School Environment

FASD for School Staff Level II is an advanced training course intended for all educators working with students with FASD including all administrators, teachers, educational assistants, ECE’s, office admin, Board personnel and bus drivers.

This Level 2 training course, building on the Level 1 Foundations in FASD course, provides the perspective of individuals who have FASD and their caregivers, is evidence-based and current, employs a culturally sensitive approach, and is presented in a way that is responsive to educators.

Caregiver Curriculum on FASD

The Children’s Aid Society of Toronto is pleased to offer the Caregiver Curriculum on Fetal Alcohol Spectrum online training. The purpose of this curriculum is to provide a venue for caregivers including foster parents, families, kinship care, youth and child care workers, child welfare services, and others trying to understand and cope with many of the life challenges faced by children with FASD.

This training was developed by the Children’s Aid Society of Toronto in collaboration with the University of Calgary, University of Manitoba, Government of Alberta and generously funded by the Public Health Agency of Canada.

Looking for an on-line support group?

If you are a person with Fetal Alcohol Spectrum Disorder, Check out: FASD: Flying With Broken Wings

If you are a caregiver or front-line worker for a person with FASD, check out: Fetal Alcohol Spectrum Disorder (FASD) Caregiver Success Support Group

Recommended Blogs

I will add to this section but I wanted to highlight a blog that I’ve been following for a couple years now that I really enjoy, and thought others might as well. It is well written, introspective and is about two dads finding hope, humour and heart in raising their young son, with great potential and a prognosis of at-risk FASD. Check it out: My Lovable Pest  

Please note:

I receive no money or endorsements for the above links. They are simply ones I’ve found helpful and are suggestions only. Always conduct your own research and seek out professional advice if needed.

All posts (except where noted) on the site are the property of myself as the writer, creator and owner of oursacredbreath.com. When sharing, please use appropriate links and references. Thank you.

If you find a broken link or have a suggestion for an addition, please leave a comment or contact fasd @ oursacredbreath.com

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