fasd on the web

Websites and Resources:

Our Sacred Breath Redbubble Shop

You will find a variety of t-shirts and gear with FASD or Red Shoes Rock. This is an international site that ships direct to you. Your purchase will support an adult with FASD who is learning about running a small business.

Our Sacred Breath on tumblr

The OSB tumblr blog is a more visual FASD blog.

Canada

Public Health Agency of Canada

This website provides information on FASD and its effects, current funded projects and funding opportunities, resources, and links to other FASD websites.

Canada FASD Research Network

CanFASD’s mission is to produce and maintain national, collaborative research designed for sharing with all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder.

FASD Ontario

FASD Ontario, is a bilingual site of accurate, up-to-date Fetal Alcohol Spectrum Disorder (FASD) information for Ontario. This website will help you find the closest available FASD services, learn about a variety of FASD topics, read the latest FASD related news and find FASD training. It was developed by Health Nexus with funding provided by the Government of Ontario.

FASworld

Provide support and information to parents, caregivers, and professionals dealing with Fetal Alcohol Spectrum Disorder (FASD), as well as individuals living with FASD.

Kids Brain Health Network

Kids Brain Health Network involves individuals and organizations passionate about helping children with neurodevelopmental disorders: parents, community groups, researchers, health care professionals, businesses, and governments.

USA

Proof Alliance

formerly: Minnesota Organization on Fetal Alcohol Syndrome (MOFAS)

Like other groups specific to a geographical area, MOFAS shares a lot of resources and information anyone can access.

NOFAS (USA)

National Organization on Fetal Alcohol Syndrome (NOFAS) welcomes your questions. Please keep in mind that NOFAS does not provide direct services, such as treatment or legal assistance. We do, however, provide information and referrals to services and resources in the United States and other countries where NOFAS has an affiliate.

UNITED KINGDOM

NOFAS – UK

NOFAS-UK  (The National Organisation for Foetal Alcohol Syndrome-UK) is dedicated to supporting people affected by Foetal Alcohol Spectrum Disorder (FASD), their families and communities. It promotes education for professionals and public awareness about the risks of alcohol consumption during pregnancy.  NOFAS-UK is a source for information on FASD to the general public, press and to medical professionals.

AUSTRALIA

NOFASD Australia

As a direct result of support from the Australian Government, Department of Health, NOFASD undertakes a range of activities including:

  • Ensuring the voice and concerns of the parents and carers of children and adults living with FASD is represented and included where it needs to be.
  • A helpline, advisory and referral service for those who have FASD or are supporting someone who has FASD;
  • A regular newsletter providing the latest information on all aspects of FASD for all relevant stakeholders;
  • Community and digital education and training services;
  • An up-to-date comprehensive website of curated resources and links to assist in all aspects of FASD;
  • Service provider training to increase sector knowledge and further FASD awareness;
  • Participation and support across all relevant national and international forums and initiatives which promote pregnancy health, prevention, diagnosis, intervention and management of FASD.

Specialized Websites:

FASD evaluations, methods, tools

This website compiles evaluation frameworks, methods, tools, and indicators of success to support the work of community-based FASD prevention programs for pregnant women and new mothers, and supportive intervention programs for adults and older youth with FASD.

International FASD Awareness Day

There are several ways to find out about Int’l FASDay …. you can do a google or web search and investigate various sources, check out FASDay which has some great information and is a site sponsored by one of the founders of FASDay, check out OSB blog post Day 50 of 99 Days: The birth of FASDay which provides links to various organizations around the world with ideas and resources or visit Red Shoes Rock for information on this annual awareness campaign leading up to FASDay.

Drymester

DRYMESTER is a new health awareness campaign for Greater Manchester, highlighting the risks of drinking alcohol during pregnancy and the impact of Foetal Alcohol Spectrum Disorder (FASD). It was launched in 2019 to encourage pregnant women or those planning pregnancy to make every trimester a #DRYMESTER and go alcohol free for the entire nine months of pregnancy. Mums-to-be can nominate partners, family and friends to get involved and join them in one alcohol free trimester each.

FASD Learning / Courses:

The FASD Learning Series

The FASD Learning Series (government of Alberta, Canada) helps individuals with FASD and their caregivers to learn more about FASD and how to support a person with FASD. The webcast and videoconference educational sessions cover a broad range of topics that target both urban and rural audiences.

In 2014/15, the FASD Learning Series presented nine educational sessions, with an overall attendance of almost 1,500 participants. There was overwhelmingly positive feedback about the value of this learning experience – more than 90 per cent of survey respondents indicated that learning goals were met, the content was relevant, and they could apply what they learned to their work.

Provincial Outreach Program for Fetal Alcohol Spectrum Disorder (POPFASD)

Series of E-learning videos

FASD and Justice

This Canadian site is designed for justice system professionals and others who want to understand more about FASD. It provides information and resources about Fetal Alcohol Spectrum Disorder (FASD), including background information, case law, legal resources and strategies for effective intervention.

Foundations in FASD

CanFASD launched Foundations in FASD  – a basic training course intended for everyone that will come into contact with individuals with FASD including all sectors of work, families, individuals with FASD, spouses, and the general public. It was free when first introduced. I believe it’s only $25.00 CDN.

This foundational level training program provides the perspective of individuals who have FASD, is evidence-based, employs a culturally sensitive approach, and is presented in a way that is responsive to the learners needs. This online basic training course will take on average two hours to complete.

Level 1 training will provide knowledge and understanding of:

  • an overview of FASD assessment and diagnosis in Canada
  • an introduction to FASD interventions and promising approaches
  • the effects of prenatal alcohol exposure on the fetus
  • the impact of alcohol on brain development
  • issues related to stigma and FASD
  • strategies for prevention and support
  • barriers to prevention and support
  • the signs and symptoms of FASD across the lifespan

A certificate will be provided to each participant upon completion.

FASD for School Staff Level II

Practical Strategies for the School Environment

FASD for School Staff Level II is an advanced training course intended for all educators working with students with FASD including all administrators, teachers, educational assistants, ECE’s, office admin, Board personnel and bus drivers.

This Level 2 training course, building on the Level 1 Foundations in FASD course, provides the perspective of individuals who have FASD and their caregivers, is evidence-based and current, employs a culturally sensitive approach, and is presented in a way that is responsive to educators.

Caregiver Curriculum on FASD

The Children’s Aid Society of Toronto is pleased to offer the Caregiver Curriculum on Fetal Alcohol Spectrum online training. The purpose of this curriculum is to provide a venue for caregivers including foster parents, families, kinship care, youth and child care workers, child welfare services, and others trying to understand and cope with many of the life challenges faced by children with FASD.

This training was developed by the Children’s Aid Society of Toronto in collaboration with the University of Calgary, University of Manitoba, Government of Alberta and generously funded by the Public Health Agency of Canada.

Looking for an on-line support group?

If you are a person with Fetal Alcohol Spectrum Disorder, Check out: FASD: Flying With Broken Wings

If you are a caregiver or front-line worker for a person with FASD, check out:

Fetal Alcohol Spectrum Disorder (FASD) Caregiver Success Support Group

Parent / Caregiver FASD Support Group

Team Love – Connecting Families Living with FASD

Please note:

I receive no money or endorsements for the above links. They are simply ones I’ve found helpful and are suggestions only. Always conduct your own research and seek out professional advice if needed. If you find a broken link or have a suggestion for an addition, please leave a comment or contact fasd @ oursacredbreath.com

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