The maiden went to visit her birth mother for a week. This was the longest visit. Up until now most visits have been a weekend, but she said she wanted to go for a week, so that is what she did. I didn’t realize I would still feel so emotional about it. The night before … Continue reading A Tale of Two Moms
That is the dilemma in my head lately after reading a post from someone about why we should not share our children’s struggles in this age of social media without their permission. I understand the premise, however can a young child, especially one with a developmental disability, offer consent? Another post I read awhile back … Continue reading FASD Life: To Share or Not to Share
Although since my last personal post, One is a lonely number, things are still in a state of uncertainty in my life, (no luck yet on the job front, my last paycheque was not entered into the system, still waiting for Record of Employment so I can collect Employment Insurance until I find a job, and … Continue reading Finding Calm in the Chaos of Life
As I was scrolling through the Our Sacred Breath Facebook feed, I came across an organization that reposted an article The Mighty published - which was based on a post from last year: 12 Wishes for My Daughter and FASD. In the four years I've been writing this blog, this has so far been the most … Continue reading 12 Wishes for FASD: A Year Later
The information for Day 89 is used with the permission of CanFASD - I encourage you to visit their webpage to download a copy of the PDF which includes references for each of the components. 10 Fundamental components of FASD prevention from a women’s health determinants perspective The following ten fundamental components of FASD prevention emerged … Continue reading Day 89 of 99 Days to FASDay: 10 Fundamental Components of FASD Prevention
Using the Neurobehavioral Approach We return to another series of posts featuring the NB Approach for raising or supporting a person with FASD. You can find the first series of posts here: Day 12 of 99 Days to FASDay. Rather than posting individually over the last few days here on WordPress, I combined the posts into … Continue reading Days 75-80 of 99 Days to FASDay: Neurobehavioral Approach to FASD
The third and last question caregivers of individuals with Fetal Alcohol Spectrum Disorder were asked had to do with what would they ask if they were in the room full of FASD researchers, clinicians and professionals: What is the biggest question I have? Are they ever going to do any kind of research to come … Continue reading Day 49 of 99 Days to FASDay: Questions for Professionals
Today we look at what caregivers said when asked: What is my greatest hope for my child/adult? ...a full, happy, purposeful life with a sense of belonging. ...that one day people will understand that FASD is an invisible diagnosis for children that look “normal.” ...a good education, a good job, and knowing that they are … Continue reading Day 48 of 99 Days to FASDay: Greatest Hopes of Caregivers
In 2019, FASD Advocate and Author Jeff Noble asked caregivers of individuals with Fetal Alcohol Spectrum Disorder to share their real life hopes and challenges. He compiled their answers to three questions in a 10 minute video, which he then showed at a conference filled with people who worked in the FASD field. It was … Continue reading Day 47 of 99 Days to FASDay: Caregiver Challenges
Day 46 of 99 Days to FASDay brings a resource of strategies for caregivers by caregivers. The above graphic highlights only three general strategies provided in this great resource 2017 Parent Retreat Strategies put together by the FASD Network of Saskatchewan (Canada). I only highlighted three of the general strategies, but the booklet (click on link above) … Continue reading Day 46 of 99 Days to FASDay: Strategies and Self Care for FASD Caregivers
