If my daughter had a time machine, she may choose to go back in time and be born without FASD. But if she chose that I would never have become her mum. My wish is that she could go back in time, receive a diagnosis earlier and therefore receive supports and interventions to lessen the struggles we … Continue reading Wish #11 for My Daughter and FASD: A Time Machine
During the adoption process, no one provided me with any education or training on FASD. No plan was established should I require access to services. We have been though some really trying times. Many people used to ask me, given what we have been through, would I still adopt my daughter if I could do … Continue reading FASD Wish 10/12: Know she is loved
This is the only wish for my daughter and FASD I stated in 2016 that I'm no longer certain of, because of what I have learned and how I have grown. Is it realistic (no) or even appropriate (not sure). Why? Because is it dismissive of people with FASD? Certainly that wasn’t my intent. We are all unique and contribute. My intent was the struggles disappear. Not the people.
There are many reasons why a woman may consume alcohol while pregnant. But FASD is not just a woman or alcohol issue. It is a complex societal issue with many layers. Negative attitudes and perceptions impact women, individuals with FASD and their families. My Wish #8 for FASD is to stamp out stigma, shame and blame.
Throughout the last fourteen years we have accessed a variety of professionals to address various issues. We were lucky as many had some understanding of FASD – but there were others who attempted to help my daughter or provide advice or suggestions, based on what works with neuro-typical children, with disastrous results. A study revealed … Continue reading Wish #7: Professionals Skilled in FASD Diagnosis and Interventions
In Ontario (Canada) a 2016 report Nowhere to Turn for Adults with Developmental Disabilities discovered over 14,000 adults with a development disability were on wait lists for services such as: respite, housing, job support or day programs. The wait for services, depending on the type and area is three years - 20 years! My wish is all adults with a developmental disability, including those with FASD, that require support receive the services they need when they turn 18, without delay.
My daughter said she wants to live with me forever. When she was young, I told her she could live with me for as long as she needed to. She tells me she is terrified of living without me – that she does not know how she will manage. While she was not ready to … Continue reading An FASD Wish: Confidence in her Future
School is geared for the masses. If we want an inclusive society and promote education as a right, then students should be taught in a way that supports and accommodates their development. FASD is not recognized in our school system as a condition that qualifies for support, be that an Educational Assistant (EA) or Child … Continue reading 2020 Wishes for My Daughter and FASD: #4 Recognition in the School System
One of the keys to helping someone with FASD is to meet them “where they are” not where society thinks they should be. I’ve had discussions with countless people who offer well-meaning but ill-informed advice, such as, “When I was 18, I was in college, had a job, was living on my own, or in … Continue reading FASD Acceptance and Understanding (Wish 3/12)
While FASD is a physical disability with over 420 co-occurring conditions, the part of the body that connects this, the brain, is invisible to our eyes. Very few people with FASD have any visible characteristics. When people can’t see a disability, people are quick to judge.
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