An interesting discussion came about a couple weeks ago on the language and word choices used to describe people with Fetal Alcohol Spectrum Disorder as well as the experience of having FASD. I asked Maggie if I could share her post which puts the debate into perspective. For me personally before I came to accept … Continue reading FASD Sufferers or FASD Superheroes
International Fetal Alcohol Spectrum Disorder Awareness Day is just under a month away. Here are some ideas and planning suggestions from FASworld and the Red Shoes Rock team on how to plan a Bell Concordance or ideas for a minute of reflection. These can be group activities or a reflection you undertake on your own … Continue reading FASDay: A Bell Concordance or A Minute of Reflection
Results published recently from CanFASD on research looking at affect regulation was significant to include as the new Day 58 of 99 Days, as over the next few days we will be looking at some of the common characteristics or challenges that people with Fetal Alcohol Spectrum Disorder live with on a day to day … Continue reading Affect Regulation and FASD
Today (July 24) is International Self-Care Day I’d never heard about it before yesterday when I was looking on the Employee Assistance Program (EAP) website at work. A bit timely since self care is, and has been, pretty low on my radar lately. Many people in a caregiver role do not have time for self … Continue reading Self Care and Messages from the Universe in the FASD Lane
Note: This is the former Day 30 for the 2019 99 Days to FASDay The ‘F‐words’ in childhood disability: I swear this is how we should think! P. Rosenbaum and J. W. Gorter The 21st century is witnessing a sea change in our thinking about ‘disability’. Nowhere are these developments more apparent than in the field of … Continue reading F words in Childhood Neurodisability
The Ontario Provincial government very quietly has asked Health Nexus to redesign the Sandy’s Law sign. There are no Provincial ads seeking input so it is important for anyone in Ontario who sees this post take 5 minutes before June 15 to provide feedback. Personally I don’t like any of the suggestions. I do not … Continue reading 3 Days Left to comment on Sandy’s Law Sign
Here is a very creative way to not only learn about emotions/coping skills/self regulation, but help identify how and when to use them. A fellow mama and FASD advocate, creator of Team Love - a group for connecting families living with FASD - made this resource after being told about a bus metaphor for emotions. … Continue reading Who is driving your bus?
It seems for those of us in the world of FASD it’s one step forward and five steps back. Just when we are making progress, and word is getting it out that consuming alcohol while pregnant is not advised, someone questions the evidence and gains an audience to keep the debate raging on. The first … Continue reading A Tale of Two Books for Moms To Be
It’s been over 50 years since alcohol and pregnancy was brought to the public’s attention Day 1: 99 Days to FASDay: First Published Study Linking Prenatal Alcohol Use and Birth Defects (even though the effects of alcohol and pregnancy have been mentioned since biblical times Day 51 of 99 Days to FASDay: History Notes of Alcohol … Continue reading FASD: Stop the Stigma
On March 29 two significant events in the world of Fetal Alcohol Spectrum Disorder occurred in Ontario - but neither received any Provincial acknowledgement. It was the 15th anniversary of Sandy’s Law and the launch of a Provincial FASD website. These coming at the end of a trifecta of other non-FASD announcements. March 29 marked … Continue reading Time to address the Pink Elephant
