At first I wasn't sure how I was going to end this series. When I wrote the original post in 2016 all the wishes were together, and this one flowed with the rest. As a stand alone it wasn't going to have much to it. In the original post I wrote that she didn't ask … Continue reading 12 Wishes for My Daughter and FASD: 2020 Edition
If my daughter had a time machine, she may choose to go back in time and be born without FASD. But if she chose that I would never have become her mum. My wish is that she could go back in time, receive a diagnosis earlier and therefore receive supports and interventions to lessen the struggles we … Continue reading Wish #11 for My Daughter and FASD: A Time Machine
The maiden and I went on a little road trip last week to pick up some rain gutters someone was giving away. I asked her to come along as I was going to have to the hatch open on the back of the car, with them hanging out, and I just wanted her to hang … Continue reading Connecting with Gutters
It’s strange and wonderful... even magical how the world works. After having a really defeating week last week, Monday arrived and the universe sent me a message to remind me that even in the middle of difficult times, if we remain open, we can find moments of magic to lift our spirits. This week is … Continue reading Our Magical Day
I've been thinking about grief and loss for awhile now. We know many caregivers for individuals with FASD experience grief and loss. We hear others say, "Oh, that's grief and loss!" - but what do we really know about it? Most of the information available on grief and loss is about death. Or in relation … Continue reading FASD: Grief and Loss for Caregivers
According to Merriam-Webster: Definition of self-regulation the act or condition or an instance of regulating oneself or itself: such as; Self Regulation: the bringing of oneself or itself into a state of order, method, or uniformity emotional self-regulation. We know individuals with Fetal Alcohol Spectrum Disorder often struggle with self-regulation, which can lead to many … Continue reading Self Regulation in FASD and me
This post is currently being updated and revised. (August 2021) Take a breath, acknowledge that grief, and all the emotions it brings, but then move forward. The what-ifs, or if-onlys have no place in parenting these children. Don’t take anything they say or do personal. This is a brain based disability. Hard to do, … Continue reading FASD: What I’ve learned so far.
The maiden went to visit her birth mother for a week. This was the longest visit. Up until now most visits have been a weekend, but she said she wanted to go for a week, so that is what she did. I didn’t realize I would still feel so emotional about it. The night before … Continue reading A Tale of Two Moms
I'm feeling very down and defeated and alone lately. I've shared a lot about the maiden (and myself in the process) but to be fair maybe I should dig a little deeper and share more of myself. This isn't a self-pity post - at least that isn't the intent. But I haven't been too active … Continue reading One is a lonely number
As I was scrolling through the Our Sacred Breath Facebook feed, I came across an organization that reposted an article The Mighty published - which was based on a post from last year: 12 Wishes for My Daughter and FASD. In the four years I've been writing this blog, this has so far been the most … Continue reading 12 Wishes for FASD: A Year Later
our sacred breath 
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