Dear Everybody: It's time to end stigma In August 2017, Holland Bloorview Kids Rehabilitation Hospital launched an anti-stigma campaign called, Dear Everybody. I was so excited about this campaign that I interrupted the scheduled 99 Days and included this campaign as today's tip. Dear Everybody is an open letter from children and youth with disabilities, … Continue reading Day 88 of 99 Days to FASDay: Dear Everybody
Day 86 of 99 Days to FASDay means only two weeks to FASDay! Do you know what your message is going to be? Since 2013, I have participated in the Red Shoes Rock campaign. From September 1-9, I wear red sneakers, and share a messages on my personal social media, as well as on social media … Continue reading Day 86 of 99 Days to FASDay: FASD Messages
2018/2019: In an effort to bring more clarity and information surrounding awareness, prevention and addressing Fetal Alcohol Spectrum Disorder, an additional graphic was created. The information that supports Day 85 (for 2018) can be found on on this blog post: What do we need to address FASD. The information below, from 2017, still relevant, looks … Continue reading Day 85 of 99 Days to FASDay: Gaps in Understanding FASD
40 Years Later the Message is Still Partially Eclipsed: Alcohol and Pregnancy Do Not Mix Day 81 of 99 Days to FASDay and the big news today (2017) is the solar eclipse. For some of us the sun will completely be eclipsed, for others it will only be a partial. And it seems fitting today's … Continue reading Day 81 of 99 Days to FASDay: Alcohol and Pregnancy Do Not Mix
Using the Neurobehavioral Approach We return to another series of posts featuring the NB Approach for raising or supporting a person with FASD. You can find the first series of posts here: Day 12 of 99 Days to FASDay. Rather than posting individually over the last few days here on WordPress, I combined the posts into … Continue reading Days 75-80 of 99 Days to FASDay: Neurobehavioral Approach to FASD
Day 74 of 99 Days to FASDay shares the 5 wishes of the Red Shoes Rock Real Families campaign. So, what exactly is Red Shoes Rock? From the Red Shoes Rock Team: R.J. Formanek began the movement to bring visibility to the invisible lifetime (yet preventable) disability of fetal alcohol spectrum disorder in 2013. In … Continue reading Day 74 of 99 Days to FASDay: 5 Wishes of Red Shoes Rock
Nine Lessons Learned: Supporting Success for Adults with FASD This post combines the last week's worth of posts. The information was discovered in the guidebook Supporting Success for Adults with Fetal Alcohol Spectrum Disorder (FASD) published by Community Living British Columbia (Canada). Rather than posting the graphics for each day on WordPress, I decided to … Continue reading Day 67-73 of 99 Days to FASDay: Supporting Adults with FASD
We are two-thirds through our journey with Day 66 of our 99 Days to FASDay. Today we offer a reminder for those who are working with, supporting or just hanging out with someone with FASD - remember stage, not age. This classic sign of FASD described by Clarren, Malbin and Streissguth. A person with FASD will simultaneously … Continue reading Day 66 of 99 Days to FASDay: Dysmaturity
Today we wrap up information from Understanding the Occurrence of Secondary Disabilities by looking at employment experiences for adults with FAS and FAE (diagnosis used in Study), as well as provide information and links to help with employment. To begin on a positive note, the Study found the following protective factors for successful employment: Adaptive … Continue reading Day 65 of 99 Days to FASDay: FASD and Work
FASD: Dependence, Independence and Interdependence Today we expand on another portion of the landmark Study Understanding the Occurrence of Secondary Disabilities (Ann P. Streissguth, Ph.D., Helen M. Barr, M.A., M.S., Julia Kogan, EdM., Fred L. Bookstein, Ph.D.) looking at management of Daily Life Skills for the participants who were 21 years of age and older. This is … Continue reading Day 64 of 99 Days to FASDay: Daily Life Skills
