An interesting discussion came about a couple weeks ago on the language and word choices used to describe people with Fetal Alcohol Spectrum Disorder as well as the experience of having FASD. I asked Maggie if I could share her post which puts the debate into perspective. For me personally before I came to accept … Continue reading FASD Sufferers or FASD Superheroes
What follows is part of a presentation my daughter and I made to an FASD Caregiver Group; she spoke about Life with FASD and below is my presentation on being an advocate. When I started this journey of being a mom to a child with FASD all I knew was what caused it. I knew … Continue reading FASD: What I’ve learned so far.
It’s been awhile since I’ve written. A lot of things in my personal life have taken my energy, while trying to support my daughter and advocate for FASD. I must admit I’m feeling a bit stuck. I don’t know where to go from here. We need so much. We need recognition of FASD as a … Continue reading FASD: Where To Now
For the last week of the 2018 and 2019 edition of 99 Days to 9/9 or FASDay, the voices and information belong to individuals with FASD. Day 92 & 93 are two quotes from two presenters at the: 8th International Research Conference on Adolescents and Adults with FASD. Although there are thousands of published articles on … Continue reading FASD: Nothing About Us Without Us
Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.
FASD A Call to Action was the culmination of two years of intensive work by members of the Fetal Alcohol Spectrum Disorder Ontario Network of Expertise (FASD ONE) and numerous discussions among a wide variety of people over the course of several years. This document provides background information about FASD, the reasons Ontario needs a provincial strategy … Continue reading What do we need to address FASD
Since starting the 99 Days to FASDay in 2017, there have been updates to some posts and new ones added in 2018 and even more will be added in 2019. In order to update information for the 2019 Campaign, the full links were removed from this post, and each day a link and graphic will … Continue reading 99 Days to 9/9 FASDay: Master Post
The information for Day 89 is used with the permission of CanFASD - I encourage you to visit their webpage to download a copy of the PDF Document which includes references for each of the components. 10 Fundamental components of FASD prevention from a women’s health determinants perspective The following ten fundamental components of FASD … Continue reading Day 89 of 99 Days to FASDay: 10 Fundamental Components of FASD Prevention
Dear Everybody: It's time to end stigma In August 2017, Holland Bloorview Kids Rehabilitation Hospital launched an anti-stigma campaign called, Dear Everybody. I was so excited about this campaign that I interrupted the scheduled 99 Days and included this campaign as today's tip. Dear Everybody is an open letter from children and youth with disabilities, … Continue reading Day 88 of 99 Days to FASDay: Dear Everybody