Do you know how red shoes became the most popular symbol for Fetal Alcohol Spectrum Disorder? Do you know when and why the Red Shoes Rock awareness campaign started?
Category: 99 Days to 9/9
FASD: Reflections on Perspective and Empathy
by R.J. Formanek It's (almost) Wednesday, so it must be Wisdom Wednesday by R.J. He seems to write something at just about the right time. We are in the homestretch of the 99 Days to FASDay journey we started on June 1 with Day 1: 99 Days to FASDay: First Published Study Linking Prenatal Alcohol … Continue reading FASD: Reflections on Perspective and Empathy
What is FASD?
I am not talking about what the acronym FASD means or even how it is caused but going deeper into what it really means for Society. Most people see it as an alcohol and pregnancy issue - but it really goes beyond that. In the 99 Days to FASDay series, we have tried to highlight … Continue reading What is FASD?
FASD Sufferers or FASD Superheroes
An interesting discussion came about a couple weeks ago on the language and word choices used to describe people with Fetal Alcohol Spectrum Disorder as well as the experience of having FASD. I asked Maggie if I could share her post which puts the debate into perspective. For me personally before I came to accept … Continue reading FASD Sufferers or FASD Superheroes
FASD: Where To Now
It’s been awhile since I’ve written. A lot of things in my personal life have taken my energy, while trying to support my daughter and advocate for FASD. I must admit I’m feeling a bit stuck. I don’t know where to go from here. We need so much. We need recognition of FASD as a … Continue reading FASD: Where To Now
FASD: Nothing About Us Without Us
For the last week of the 99 Days to 9/9 or FASDay, the voices and information belong to individuals with FASD. Day 92 & 93 are quotes from two presenters at the: 8th International Research Conference on Adolescents and Adults with FASD. Although there are thousands of published articles on FASD, there remains limited research specifically … Continue reading FASD: Nothing About Us Without Us
FASD: The Invisible Disability
Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.
FASD: Pillars of Success
Upon discovering the FASD A Call to Action it was decided to use this as the new Day 85 of 99 Days. These recommendations can serve as an blueprint for community pillars of success. It is important to create a unified voice, but if your area does not have one yet, this is an example. … Continue reading FASD: Pillars of Success
FASD: Common Messaging
Over the last few months, the 99 Days to 9/9 FASDay series of infographics created in 2017 has been re-shared on Facebook, Twitter and Tumblr. Some updates were made along the way, but for Days 82, 83 and 84 the focus was changed in 2018 when I came across The Canada FASD Research Network’s Common … Continue reading FASD: Common Messaging
99 Days to 9/9 FASDay: Master Post
Since starting the 99 Days to FASDay in 2017, there have been updates to some posts and new ones added in 2018 and even more will be added in 2019. In order to update information for the 2019 Campaign, the full links were removed from this post, and each day a link and graphic will … Continue reading 99 Days to 9/9 FASDay: Master Post
our sacred breath 
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