An interesting discussion came about a couple weeks ago on the language and word choices used to describe people with Fetal Alcohol Spectrum Disorder as well as the experience of having FASD. I asked Maggie if I could share her post which puts the debate into perspective. For me personally before I came to accept … Continue reading FASD Sufferers or FASD Superheroes
What follows is part of a presentation my daughter and I made to an FASD Caregiver Group; she spoke about Life with FASD and below is my presentation on being an advocate. When I started this journey of being a mom to a child with FASD all I knew was what caused it. I knew … Continue reading FASD: What I’ve learned so far.
It’s been awhile since I’ve written. A lot of things in my personal life have taken my energy, while trying to support my daughter and advocate for FASD. I must admit I’m feeling a bit stuck. I don’t know where to go from here. We need so much. We need recognition of FASD as a … Continue reading FASD: Where To Now
For the last week of the 2018 and 2019 edition of 99 Days to 9/9 or FASDay, the voices and information belong to individuals with FASD. Day 92 & 93 are two quotes from two presenters at the: 8th International Research Conference on Adolescents and Adults with FASD. Although there are thousands of published articles on … Continue reading FASD: Nothing About Us Without Us
Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.
FASD A Call to Action was the culmination of two years of intensive work by members of the Fetal Alcohol Spectrum Disorder Ontario Network of Expertise (FASD ONE) and numerous discussions among a wide variety of people over the course of several years. This document provides background information about FASD, the reasons Ontario needs a provincial strategy … Continue reading What do we need to address FASD
Over the last few months, the 99 Days to 9/9 FASDay series of infographics created in 2017 has been re-shared on Facebook, Twitter and Tumblr. Some updates were made along the way, but for Days 82, 83 and 84 I changed the focus for 2018 (and continued to use these in 2019) when I came across … Continue reading FASD: Common Messaging
On June 1 the international movement to bring awareness to Fetal Alcohol Spectrum Disorder began with the start of Red Shoes Rock to Stop FASD and the 99 Days to FASDay. There have been some exciting new additions to this year’s campaign. Red Shoes Rock: Start the Conversation For the 5th Anniversary, a new logo, … Continue reading Red Shoes Rock and 99 Days to FASDay
Since starting the 99 Days to FASDay in 2017, there have been updates to some posts and new ones added in 2018 and even more will be added in 2019. In order to update information for the 2019 Campaign, the full links were removed from this post, and each day a link and graphic will … Continue reading 99 Days to 9/9 FASDay: Master Post
Today, on this 9th day of the 9th month at the 9th hour, International FASD Awareness Day, we are encouraged to stop, reflect on and share the message of no alcohol for nine months during pregnancy (049) to bring attention to the risks of prenatal exposure to alcohol. I wondered how I would end the … Continue reading FASDay: What are you grateful for?
