Do you know how red shoes became the most popular symbol for Fetal Alcohol Spectrum Disorder? Do you know when and why the Red Shoes Rock awareness campaign started?
Category: 99 Days to 9/9
FASD: Reflections on Perspective and Empathy
by R.J. Formanek It's (almost) Wednesday, so it must be Wisdom Wednesday by R.J. He seems to write something at just about the right time. We are in the homestretch of the 99 Days to FASDay journey we started on June 1 with Day 1: 99 Days to FASDay: First Published Study Linking Prenatal Alcohol … Continue reading FASD: Reflections on Perspective and Empathy
What is FASD?
I am not talking about what the acronym FASD means or even how it is caused, but going deeper into what it really means for Society. Most people see it as an alcohol and pregnancy issue - but it really goes beyond that. The Canada FASD Research Network released their 2020 FASD Awareness Month Toolkit … Continue reading What is FASD?
FASD Sufferers or FASD Superheroes
An interesting discussion came about a couple weeks ago on the language and word choices used to describe people with Fetal Alcohol Spectrum Disorder as well as the experience of having FASD. I asked Maggie if I could share her post which puts the debate into perspective. For me personally before I came to accept … Continue reading FASD Sufferers or FASD Superheroes
FASD: What I’ve learned so far.
This post is currently being updated and revised. (2022).
FASD: Where To Now
It’s been awhile since I’ve written. A lot of things in my personal life have taken my energy, while trying to support my daughter and advocate for FASD. I must admit I’m feeling a bit stuck. I don’t know where to go from here. We need so much. We need recognition of FASD as a … Continue reading FASD: Where To Now
FASD: Nothing About Us Without Us
For the last week of the 2018, 2019 and 2020 edition of 99 Days to 9/9 or FASDay, the voices and information belong to individuals with FASD. Day 92 & 93 are quotes from two presenters at the: 8th International Research Conference on Adolescents and Adults with FASD. Although there are thousands of published articles on … Continue reading FASD: Nothing About Us Without Us
FASD: The Invisible Disability
Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.
What do we need to address FASD
Day 85 of 99 Days to FASDay FASD A Call to Action was the culmination of two years of intensive work by members of the Fetal Alcohol Spectrum Disorder Ontario Network of Expertise (FASD ONE) and numerous discussions among a wide variety of people over the course of several years. This document provides background information about FASD, … Continue reading What do we need to address FASD
FASD: Common Messaging
Over the last few months, the 99 Days to 9/9 FASDay series of infographics created in 2017 has been re-shared on Facebook, Twitter and Tumblr. Some updates were made along the way, but for Days 82, 83 and 84 I changed the focus for 2018 (and continued to use these in 2019) when I came across … Continue reading FASD: Common Messaging
our sacred breath 
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