by R.J. Formanek It's (almost) Wednesday, so it must be Wisdom Wednesday by R.J. He seems to write something at just about the right time. We are in the homestretch of the 99 Days to FASDay journey we started on June 1 with Day 1: 99 Days to FASDay: First Published Study Linking Prenatal Alcohol … Continue reading FASD: Reflections on Perspective and Empathy
I am not talking about what the acronym FASD means or even how it is caused, but going deeper into what it really means for Society. Most people see it as an alcohol and pregnancy issue - but it really goes beyond that. The Canada FASD Research Network released their 2020 FASD Awareness Month Toolkit … Continue reading What is FASD?
An interesting discussion came about a couple weeks ago on the language and word choices used to describe people with Fetal Alcohol Spectrum Disorder as well as the experience of having FASD. I asked Maggie if I could share her post which puts the debate into perspective. For me personally before I came to accept … Continue reading FASD Sufferers or FASD Superheroes
What follows is part of a presentation my daughter and I made to an FASD Caregiver Group; she spoke about Life with FASD and below is my presentation on being an advocate. When I started this journey of being a mom to a child with FASD all I knew was what caused it. I knew … Continue reading FASD: What I’ve learned so far.
It’s been awhile since I’ve written. A lot of things in my personal life have taken my energy, while trying to support my daughter and advocate for FASD. I must admit I’m feeling a bit stuck. I don’t know where to go from here. We need so much. We need recognition of FASD as a … Continue reading FASD: Where To Now
For the last week of the 2018, 2019 and 2020 edition of 99 Days to 9/9 or FASDay, the voices and information belong to individuals with FASD. Day 92 & 93 are quotes from two presenters at the: 8th International Research Conference on Adolescents and Adults with FASD. Although there are thousands of published articles on … Continue reading FASD: Nothing About Us Without Us
Fetal Alcohol Spectrum Disorder vastly outnumbers other common developmental disabilities; however, FASD comes with relatively little public recognition or understanding.
Day 85 of 99 Days to FASDay FASD A Call to Action was the culmination of two years of intensive work by members of the Fetal Alcohol Spectrum Disorder Ontario Network of Expertise (FASD ONE) and numerous discussions among a wide variety of people over the course of several years. This document provides background information about FASD, … Continue reading What do we need to address FASD
Over the last few months, the 99 Days to 9/9 FASDay series of infographics created in 2017 has been re-shared on Facebook, Twitter and Tumblr. Some updates were made along the way, but for Days 82, 83 and 84 I changed the focus for 2018 (and continued to use these in 2019) when I came across … Continue reading FASD: Common Messaging
On June 1 the international movement to bring awareness to Fetal Alcohol Spectrum Disorder began with the start of Red Shoes Rock to Stop FASD and the 99 Days to FASDay. There have been some exciting new additions to this year’s campaign. Red Shoes Rock: Start the Conversation For the 5th Anniversary, a new logo, … Continue reading Red Shoes Rock and 99 Days to FASDay
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