Participants Required (Ontario) for FASD / ADHD Study

In an effort to improve outcomes for those with FASD and ADHD, Dr. J. Kapalanga, Principal Investigator with Grey Bruce Health Services (Ontario) and Western University is calling for assistance in the study of clinical and genetic links between FASD and ADHD.

This study will examine the clinical and genetic links between FASD and ADHD. The goal is to understand the factors leading to each of these disorders. With the knowledge gained, we hope to improve the screening, diagnosis, and care of children and youth affected with FASD.

Additionally, this study is part of a long-term project to enhance our understanding, raise awareness, and advocate for early care and development of new resources and services that can help better the lives of families living with FASD.

Fetal Alcohol Spectrum Disorder (FASD)

is a diagnostic term used to describe impacts on the brain and body of individuals prenatally exposed to alcohol. FASD is a lifelong disability. Individuals with FASD will experience some degree of challenges in their daily living, and need support with motor skills, physical health, learning, memory, attention, communication, emotional regulation, and social skills to reach their full potential. Each individual with FASD is unique and has areas of both strengths and challenges.

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Attention Deficit Hyperactivity Disorder ADHD

is a medical neurobiological disorder. It is an illness or deficit of the nervous system most often due to genetic or biological factors. ADHD is a chronic condition that can present at all levels of severity and rarely occurs by itself. There are three core symptoms: the inability to regulate attention, the inability to regulate activity, and difficulty with inhibitory behavior resulting in impulsivity. ADHD is the most common mental health disorder of childhood.

FASD and ADHD are prevalent across the Grey Bruce region (Ontario) and Canada as a whole. There is no clinical evidence that one drink during an entire pregnancy causes significant harm. There is also no clinical evidence proving lower levels of alcohol use during pregnancy to be safe.

FASD, a chronically underdiagnosed condition often presenting with symptoms that overlap with other neurodevelopmental disorders such as ADHD. A common misdiagnosis of ADHD can lead to delayed care and inadequate delivery of essential services and resources for those living with both conditions.

Criteria:

  1. You live in Ontario
  2. You are the birth parent of a child between the age of 3 and 17 years of age who has been diagnosed with FASD and/or ADHD.
  3. You are the adoptive parent/caregiver of a child between the age of 3 and 17 years of age who has been diagnosed with FASD and/or ADHD.
  4. You are an individual with ADHD or FASD.
  5. Points of Research:
  • You will be asked to provide your history.
  • You will be asked to provide a medical history of your child.
  • You will be asked to provide prenatal and postnatal history of alcohol exposure.
  • You will be asked to provide information about lifestyle and diet.

For more information or to be included in this study please contact:

Dr. Joachim Kapalanga:  nkapalanga@gbhs.on.ca
Katie Hewittson, Office Assistant:  519 376 2121 ext. 2891
Tishya Parikh, Research Assistant:  tparikh2021@meds.uwo.ca
Lorie Hill, CAST FASD Outreach, mother: phone/text 519-832-8293

 

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