Day 49 of 99 Days to FASDay: The Truth About FASD

Day 49 of 99 days to FASDay

Day 49 of 99 Days to FASDay continues with another quote, from Myles, an adult with FASD, who gives advice to other individuals with FASD.

If you are looking for more more inspiration from adults with FASD check out:

Stories of Adults with FASD from the Asante Centre. Adults who share their stories on what life has been like for them growing up with FASD. From their experiences we can learn better ways that communities can nurture and support those living with FASD, and help individuals and families reach their full potential.

FASD Lane a place for adults with Fetal Alcohol Syndrome (FAS), Fetal Alcohol Effects (FAE), or any of the disorders defined as Fetal Alcohol Spectrum Disorders (FASD).

Role Models from Learning with Hope. A collection of first person accounts from people who know what it feels like to walk through the world with this invisible disability.

And for those that would prefer to watch a video check out Young Adults Share their experiences with FASD from MOFAS.

Although not a free resource, if you are interested in learning more, I found a conference April 18-21, 2018- the 8th International Research Conference on Adolescents and Adults with FASD

Registration is not yet open, but the write up states: Although there have been thousands of published articles on FASD, there remains to be limited research specifically on adolescents and adults with FASD. As individuals diagnosed with FASD continue to age, the “need to know” across a broad spectrum of areas continues to be critically important for identifying clinically relevant research questions and directions.

2018 UPDATE: The Conference was a great success from what I heard. Click Webcasts to find videos of the presentations, including some powerful presentations by adults with FASD.

I also discovered a Doctorate in Social Work Dissertation by Anna CK Erb, University of Pennsylvania (2015)  The Life Stories of Individuals Who as Adults Were Identified as Experiencing the Effects of Fetal Alcohol Spectrum Disorder 

A narrative-style qualitative research methodology was used to explore the identity of adults living with FASD, in particular those who learned about this during adulthood. e researcher interviewed four adults living with the effects of FASD who became aware of their FASD as adults and reviewed several published autobiographical accounts as additional data sources. Upon analysis, themes of identity emerged and parallels between the life stories of the participants and other studies that address the psycho-social effects of FASD were identified. The research results suggest implications for social work practice, bring positive attention to a disenfranchised group, identify areas of needed study and shed insight into how adults living with the effects of FASD conceptualize their identity.

If you have any links to share, please comment below.

 


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