Day 48 of 99 Days to FASDay

Day 48 of 99 Days to FASDay

Day 48 of 99 Days to FASDay brings some special advice from an adult with FASD.

When the maiden turned 18 last year, my focus changed from looking for advice for children and teenagers, to advice for adults. In particular, I have been trying to find advice from adults about the lived experience with FASD. I found this quote in a book called FASD: unexpected journeys published by the FASD Network of Saskatchewan.

From the Book’s Foreword:

In 2015, the FASD Network set out to bring greater awareness to Fetal Alcohol Spectrum Disorder by collecting the stories of people whose lives have been affected by the disability.

The various chapters included in this book are the stories of the remarkable people who live their daily lives faced with the struggles and stigmas of an invisible, often disregarded disability. Through the voices of the caregivers who dedicate their entire selves to improving the lives of others, through the eyes of family members and siblings, through the experiences of the extraordinary individuals living with FASD this book details the unexpected journeys of twenty-three Saskatchewan families as they navigate a unique disability.

It is our hope that this book will help show the world the truth about FASD. It is with the purpose of ending the stigma and misconceptions that this book was created. Chronicled within this collection are the stories of the challenges that have been overcome, the successes gained after countless struggles, and the accomplishments that were always deemed impossible. It is a testament to the true ability and nature of the people among us who live with FASD.

For anyone on their own journey with FASD, we hope that you finish these stories with a greater understanding of the disability, a renewed sense of hope in the world, and most importantly, the knowledge that you are not alone.

I would like to thank the FASD Network and Nikki for granting permission to share this information; and encourage anyone who wants to be inspired to contact The FASD Network and order a copy of FASD unexpected journeys.

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Another great compilation of real stories is Real Families. Real Lives. This virtual relay race for Red Shoes Rock to Stop FASD, leading up to FASDay on September 9, 2017, shares stories from real families living with FASD.

Come back tomorrow for more advice from another individual with FASD.


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